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When Treatment Gets Scary

... of your body—your heart, lungs, or vascular system, for instance, is also scary. And that there is no cure for RD—yet!—is terrifying. RA treatments can... be scary too? All that’s enough fright for anyone, right? But wait, there’s more. Now add to all of the above the fact that the drugs that treat RD...

RA and Serotonin Syndrome…. a very scary situation!

...A week ago today I was lying supine in the middle of my bed, drooling, and unable to move anything but my head. I could hear my children playing in our living room, but despite my brain doing it’s hardest to force me to yell for one of them, the only thing I could do was move my head from side...

Is anyone else using Orencia?

...Feedback on Orencia and possible side effects needed? Dr recommending Orencia IV infusion reviewed possible side effects. Scary, Orencia self injectable. No longer doing the job. Any feedback to share?...

What Halloween Costume Would Your RA Be?

... RA be?” We got so many awesome responses, that we wanted to share some of your creative, and often scary, suggestions! Tough Morning Related Costumes... A zombie in the morning after no sleep—grrr!! A very scary creature only tamed by caffeine and analgesics! My hands do look like a witch’s hands. When...

My Poor, Ignored Feet

..., can obviously hurt you. I wonder if I’m harming my feet even more by hiding them away. But it’s also scary because I see so much about RA damage... that people in the RA community really don’t talk about? It’s scary when the few things you do hear are of people getting their toes amputated.  I’ve...

Does anyone else’s rheumatologist not seem to hear you?

...I went to my rheumatologist yesterday. My RA is flaring so frequently and badly that I just quit my job because of it. This was a huge and very scary... scare me. In fact I don’t usually complain at all, which drives my husband crazy because he wants to know wants going on with me and I don’...

Parenting Amidst the Pain

... was so scary.  When I was trying to hold pain inside, I was also trying to put on a smiley/”everything is fine” face which was taking more of my... to play that caused her to do it.  I was acting out of character and it was scary to her.  Once I explained what was happening we had more relaxing times...

The PTSD of RA

... ever have flares as bad as the bad old days? Incurable, recurring pain is traumatic. It’s scary. It may keep you from functioning, from carrying out your... that a sudden, sharp twinge scares the you-know-what out of me? Even though my disease is relatively “under control” these days? Even though I hardly...

The Power of Chemo

... suppose my friends had this reaction because most people are familiar with cancer, how scary it is, and how terrible the drugs used to treat cancer... with cancer. As I said in a previous article, “At Least It’s Not Cancer”, cancer is scary. Cancer is serious. And I am very glad that I do...

“At Least It’s Not Cancer”

... not cancer. Cancer is scary. Cancer is serious. Cancer is known to be life threatening and very difficult to treat. I am, in fact, very glad that I do... necessarily dwell on these sad and scary realities about autoimmune diseases. But I do think there is something we can learn from these stories. While...

Before the Scars

...Sometimes I try to remember my life before the scars. It seems like a long time ago, because I guess it was. But there was a time before surgeries... and IV lines, when I didn’t have any scars. I specifically remember the night before my first joint replacement surgery, when I was 15 years old. I...

Showing Off My Scars

... felt embarrassed about my new difference. I worried that they stood me apart and looked unattractive. Would my scars scare people away? But as I...Throughout the years I’ve accumulated quite a collection of scars.  If I were a painted canvas, I would be an original, abstract piece of modern art...

Comparing Our RA Scars

... their body scars. They pull up clothes to show their various badges of honor – some from school and bar room fights, some from burns, and others from clashes... with various sea creatures. Brody feels like the odd man out as he only has an appendectomy scar to share. He lifts up his shirt, looks at his medical...

Facing the Road Ahead with RA

... a two year old and another on the way, so I completely understand the difficulties you are facing. It can be really scary to think about how... to care for our children. One of our community members asked the question: How long does it take for the RA to reach final stage? I am really scared. I...
Self-Love and RA

Self-Love and RA

... effort to change thought patterns, and living with RA can be isolating, anxiety producing, and scary. It’s no wonder that self-love can be hard...