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The Impact of RA on Quality of Life – Results From the 2018 RA In America Survey

The Impact of RA on Quality of Life – Results From the 2018 RA In America Survey

So many RA symptoms to deal with…

RA comes with a slew of symptoms that impact the day-to-day of those who live with it. Fatigue, pain, stiffness, inflammation, and difficulty sleeping can quite gravely impact the quality of life; in fact, painful joints and fatigue affect one’s daily life the most. And the sheer number of manifestations of RA can leave one exasperated about how to live a normal life.

With RA saying “I can” becomes a daily struggle

When living with RA, one’s physical well-being is a key component of one’s quality of life. With the debilitating nature of RA symptoms, these symptoms have a major impact on how much one is able to do and accomplish.

Losing one’s SELF to RA

RA impacts one’s identity and sense of accomplishment negatively. We all want to work, achieve, complete deadlines, and cross items off our to-do lists, but when one’s sense of self is challenged by RA symptoms, it leaves one feeling discontented with life.

The isolation of RA

Humans are a social animal. Thus, when RA becomes overwhelming, it impacts their sense of well-being and fulfillment. RA symptoms impact this aspect of one’s life too, especially social and intimate connections. So many of our community members have reported losing friends due to the unpredictable nature of RA and it’s symptoms. Unexpected flares and untimely exacerbations lead them to cancel plans with friends causing frustrations and may eventually negatively impact their friendships.

Accepting RA?

Accepting RA (or not!) is a big piece of the puzzle of making sense of this condition, its diagnosis, and how to cope with daily challenges. Acceptance is often a long and emotionally loaded process, but one often deemed important by many community members. The RheumatoidArthritis.net community has members who are in various stages of their acceptance journey and there is no right or wrong answer to how one copes with this life-altering diagnosis.

RA diagnosis; a life of worry?

Since RA is an autoimmune disease, it is a progressive condition. For many people, its symptoms get worse over time. Not only the symptoms, but the underlying inflammation in RA can cause permanent joint damage which can, in turn, impact the quality of life and the treatments one may need, including surgery. Many of our community members have time and again expressed worry over their RA progressing and making their lives even more difficult than it already is.

The Rheumatoid Arthritis in America 2018 survey was conducted online from May to June of 2018. It had a total of 3,181 participants.

Comments

  • Bets
    3 weeks ago

    I am so thankful for the survey, it validates what I experience. My self worth has taken quite a blow dealing with RA.
    Completely agree with Piano14 about the paid actors in commercial riding bikes & smiling lol, It is very misleading!

  • Kelly Dabel moderator
    3 weeks ago

    Thanks for sharing and commenting Bets. So glad that this was helpful and reminded you that you are not alone in this. Wishing you relief ahead. We appreciate you being part of our community. Best, Kelly, Rheumatoidarthritis.net Team Member

  • Piano14
    1 month ago

    It just goes to show you that all the people in the RA adds sporting happy smiles as they are biking along are really paid actors!

  • northlake
    4 weeks ago

    I would love to get addresses of the appropriate drug companies and ask them to show us as we really are. Let the Public kbow what RA looks like. I am so tired of the come back answer, “I have terrible arthritis all over my body.” I believe we must educate, for all of our sakes. NorthLake

  • Angienothappy48
    3 months ago

    I have had RA since i was. A Child its hard to move know write i have to get up 2 hours to medicate my self ro get ready for work i am a MA at a childrens neurology clinic i am in pain every day my feet and hands and i cant sleep but i suffer through it to keep going i get a biological medication every 4 weeks i feel worse than better i know people are tired of me complaining i am so depressed

  • Lawrence 'rick' Phillips
    3 months ago

    Perhaps when you see your rheumatologist you will discuss a different biologic medication. There are many brands and varieties available. i hope you will find something that works out.

  • Angienothappy48
    3 months ago

    I have had RA since i was. Child its hard to move know write i have to get up 2 hours to medicate my self ro get ready for work i am a MA at a childrens neurology clinic i am in pain ecery day my feet hand and i cant sleep but i suffer throug it to keep going i get a biological medication wvery 4 weeks i feel worse than better i know people are tired of me complainingi am so depressed

  • sarahjanebass
    6 months ago

    Came to site to check sunsensitivity and drugs for RA. Egads but I’m on all of them.!!!
    The minimal exposure to right arm has provoked a storm in which I could cheerfully have stabbed myself. Am now covered in steroid cream , what bliss. Will be visiting website regularly. SB

  • Honeyma1
    8 months ago

    I always worry about my husband and Wish he would see a Rheumatologist. Something is just not right.

  • Jo J
    9 months ago

    Can you share a link to the survey questions and results, please. That is, if there is more than what is shared here?
    Thanks,
    Jo

  • betharooski
    10 months ago

    Jeepers! That is how the article ends? We know that RA stinks. You guys/gals could have stated that this site will provide support, up to date information, and such. Yes- it was a report, but I am disappointed. A newly diagnosed patient coming to this site might not dig deeper in it to find the help that one can obtain. It helps me just to have a place to vent. So- thanks for this moment on my soapbox.

  • Nina Winterbottom moderator
    10 months ago

    I see what you mean, @betharooski, this certainly emphasizes the downsides. It might serve those who’ve been dealing with it for a while. Thank you for sharing your thoughts on having a more support info in here, I’ll certainly pass it on to the team! – Nina, RheumatoidArthritis.net Team

  • betharooski
    10 months ago

    Thanks!

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