Community Thoughts- RA Taking On a Life of Its Own

Living with RA has its unexpected twists and turns, ebbs and flows, ups and downs. It’s hard to know what it will bring day to day.  We asked the Facebook Community to give shape and form to this uncertainty. We asked them to answer the question: “If your RA was to take on it’s own life form what would it be? (for example: a weather system, a movie/TV character or an animal)

Check out some of the innovative and creative responses

Animals:

  • Stingray
  • A bear sleeping or moving along at a comfortable pace then angry and raging- unpredictable.
  • Vultures it waits for you to get to the point you are vulnerable with pain and lethargic and it swoops to claim it’s prey.
  • Lion that sneaks up on me in an attempt to devour every part of me.
  • Parasite slowly stealing my life
  • An alligator grabbing its prey then rolling over and over with it while shaking it till the bones are ripped form their joints.
  • A tiger turned into a submissive kitten
  • A turtle at ease in my own shell being me
  • A dog with huge teeth
  • A turtle always a place to hide
  • Snake- sneaky and deceitful
  • A scorpion- Deadly
  • Sloth
  • A cat sometimes chilling, other times screeching and clawing everywhere
  • Wolverine
  • Enigma like small creature
  • A snake sneaking through my body wreaking havoc throughout. Never know where he will strike next.
  • The Aflack Duck
  • Raging Bull
  • Honey Badger
  • An elephant that crushes my life with pain and fatigue
  • A mean bear- tore my body apart
  • Tapeworm who lays its larva in different joints, on given days one who removes my vitality
  • Gargoyle
  • Any animal with sharp claws
  • A big cat with claws
  • Ants- when I get a flare up it feels like thousands of ants running through my joints.
  • Luna moth ineffectively flapping its wings against my screen window to get at the light
  • Gorilla calm one period of time a raging maniac the next
  • Chameleon
  • Badger ferocious and tenacious
  • Cujo
  • Vicious badger
  • Phoenix that keeps rising from the ashes over and over


TV/Movie:

  • T-Rex
  • Dexter-Morgan
  • The Perfect Storm
  • Phantom of the Opera
  • One Flew Over the Cuckoo’s Nest
  • Godzilla
  • The Joker
  • Nightmare of Elm Street
  • Freddy Krueger
  • Game of Thrones-and I’m the Prisoner
  • One Flew over the Cuckoo’s Nest-Jack Nicholson
  • SAW- Constant torture and pain
  • Jekyll and Mr. Hyde
  • Hulk
  • Terminator
  • Whomping Willow- Harry Potter
  • Grim Reaper taking everything from me most of all my independence and my ability to work.
  • IT-Stephen King Horror Novel
  • Misery – Kathy Bates
  • Frankenstein
  • Any Horror Movie with no end
  • Finding Nemo- each day has it’s ups and downs but in the end I keep going for my daughter
  • X-men and Wolverine Combo
  • Rambo sneaks up kicks my butt then runs off, REPEAT.
  • The Mask- Jim Carey
  • Monster’s Ink- Randall
  • Poseidon’s Adventure
  • The Tin Man being beat by the monkeys
  • Hannibal Lector
  • The San Andreas Fault
  • Tortoise and the Hare

Weather System:

  • Hurricane come to reek havoc
  • Tornado flares just come out of no where and can disappear like a flash
  • Twister
  • Cold weather
  • The Great White North (where he** freezes over)
  • Hurricane (Sandy, Katrina)
  • Gray Gloomy Day
  • Hurricane because you just don’t know until landfall
  • Michigan Winter Storm- Snow, Thunder, Ice and Sunshine all at the same time.
  • A lightning storm with gobs of rolling thunder
  • March weather- storming one day, sunny and want a few days later
  • Earthquake you never know when it is going to hit you and knock you off your feet.
  • F5 tornado
  • ALL weather
  • Oregon Weather rainy for weeks then gorgeous and sunny with all the hope you can muster for a day, then freezing rain.
  • Typhoon, it washes over every aspect of my life seeking to destroy all that is in it’s path

Cartoon Characters:

  • Tasmanian Devil because it goes crazy at any given time and takes no prisoners on what joints to attack just a wild animal.
  • Pac Man munching away at me
  • Tasmanian Devil it’s loud, inconvenient and destroys everything in it’s path.

Things that Move:

  • An RD mack truck it hits you hard, takes your breath away and then backs up over you.
  • An out of control freight train, that hurtles wildly down the track and you never know what is around the next blind corner.
  • A rollercoaster never what when it will go downhill or uphill or throw me a curve.
  • Getting hit by a semi
  • A roller coaster, one day or hour you feel ok the next you’re hobbling, fatigue and in pain, so unpredictable.

Evil Creatures:

    • Zombie always eating at my brain
    • Angry gnomes
    • Gremlins I can go from cute to insane in a matter of seconds
    • Monsters which have destroyed my life
    • Dragon sometimes it sleeps and sometimes it dozes but keeps one eye opened and other times is wide awake and raging!
    • Mean gremlin
    • A vampire because it sucks the life outta me
    • Nasty elves
    • Sometimes it’s a sleeping dragon, sometimes the dragon awakens with force and life of it’s own.
    • Ogre
    • A flesh eating zombie
    • A psychopath that loves to inflict torture by prying my joints open and dropping sulfuric acid in them
    • Creepy monster that goes from joint to joint
    • Abducted by invisible aliens conducting horrible painful experiments
    • Banshee- screaming a quiet ache like that of harsh words.
    • A dark relentless monster.
    • A seething relentless monster that you don’t turn your back on.
    • Evil spirit
    • A psychopath and her name is raging Annie.

Other

      • Tight rope across the Grand Canyon and I have to walk a straight and narrow line to stand up straight.
      • A marathon that never ends
      • A plastic doll with a fake smile
      • Legion of Roman Soldiers
      • Obsessed Ex- boyfriend who stalks me everyday and keeps me cooped up in my house
      • Devil and miracle worker
      • Ton of bricks
      • Volcano it sits quietly, bubbling, getting hot and then FLARE!!
      • A ghost comes and goes sometimes worse
      • A thief that keeps stealing from me
      • Nightmare
      • Burning needles- red hot and swollen
      • My worst nightmare always there and always ready to come alive.
      • A tiny baby in need of constant attention
      • Pressure chamber where, everything always hurts. Constant knawing at every joint.
      • Exorcism
      • An active volcano
      • A stalker, waiting
      • Premenopausal woman with hot flashes and mood swings
      • Demonic possession- you have no control, the demon rages throughout my body.
      • A hateful person always taunting me
      • Torquemada the man who tortured people during the inquisition.
      • Vines that have creeped through every ounce of my being.
      • Invasion of body snatchers.
      • A PRISONER IN MY OWN BODY
      • A thief at night it sneaks in without warning and incapacitates me
      • The never ending story because it’s a never ending disease that causes crippling pain
      • Broken down bridge
      • A faceless vacuum type monster it has taken away or sucked up many things from me.
      • A ball bat beats me all over my body

If your RA took on a life of it’s on what would yours be? Comment below.

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