How Did You React When You Were Diagnosed With RA?
Receiving an RA diagnosis can lead to a variety of conflicting and powerful emotions. Sometimes, these can be fear of the future, anger at a new reality, or relief from a long, mysterious journey. No matter what an individual’s reaction is to a new diagnosis though, all experiences are valid. No two people will experience this life-changing event in the same way, and that is completely alright. To highlight these varying and complex emotions, we asked members in our community to share with us how they felt when they were first diagnosed. The responses we received were so varied and incredible, we wanted to share some of these emotions and experiences with you.
Fear and Disbelief
The first reaction many of our community members had was one of shock, denial, disbelief, and anger. For many, it was fear; fear of the unknown, fear of the unexpected, and fear of what lies ahead in the future.
- “Was shocked and dismayed, didn’t think it would be me”
- “A little panicked and afraid, as I had a neighbor in a wheelchair. Fortunately, I had a great doctor. and so far, I am getting along ok. 76 and counting, feel pretty good most days!”
- “I was terrified!”
- “Horrified… I fell apart because I already knew my life as I knew it was over”
- “I was in so much shock... I cried, I didn’t know how to accept it or explain it to my family”
- “I was at a loss. No one I knew had it and I did not know anything about it. I began my voyage that took me in directions not intended. I was 23 when diagnosed; straight out of college”
Anger and Sadness
In addition to being scared or in shock, many of our community members reported feelings of anger, frustration, deep sadness, or even depression.
- “I went and sat beside a river in the woods and cried for a couple of hours. I had an idea of what I was in for. I had a relative with R.A. It was devastating.”
- “Shocked, angry and sad for what was going to happen to my body”
- “I cried and couldn't even say it without crying for a while. I knew what it meant from watching my aunt who had it”
- “I was depressed and angry. I was diagnosed just months after I had retired and had plans that I knew I would have to give up”
- “I sat in my car in the parking lot and cried for a good 20 minutes before going to a friend’s house crying all the way”
- “Depressed, knew that my life was going to not be the same”
- “I admit that I was very angry”
On the other end of the spectrum, many of our community members felt a sense of relief when receiving their diagnosis. They felt comforted to have a name to put on their pain and an opportunity to start appropriate treatment. For many, this diagnosis was a long time coming.
- “Relieved I wasn't crazy for feeling so bad for so long”
- “I am probably one of the few who was happy. Not that I had RA, but that I had a diagnosis that confirmed something was wrong with me and I wasn't making it up!!”
- “Glad for the diagnosis but then denial set in. I learned as much about it as I could and slowly acceptance followed”
- “First, relieved to have an answer. The whole "it's probably nothing" business was not going to cut it. Afterward, overwhelmed”
- “Just glad to finally get a confirmed diagnosis so a decision about treatment could get started”
- “I was relieved that I wasn’t insane. My pain and weakness had a name”
It’s clear to see that a diagnosis of RA can bring on many different emotions regarding the life-changing journey that’s in store. Although an RA diagnosis can completely change your world, there are individuals in our community, and beyond, who are here for you and want to help you make sense of what comes next. You are not alone. Let us know what emotions you experienced when you received your RA diagnosis and how you’re coping now.
Quiz: What % of our community members are living with irritable bowel syndrome?