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Do You Rally Around RA?

Often, if I don’t feel good, I can lie down for about an hour and I start to feel better.

I call that rallying.

I can usually get up and do what I need to do. As an example, when I traveled to New York in May for a Pfizer meet-up, my photosensitivity was in high gear because of spending all day in a conference room with fluorescent lights.  By the end, I had a headache and was nauseous.

But I really wanted to go out for dinner with some of the bloggers I met.  So I went back to my hotel room, amped up the air conditioning, put a cold compress on my head, took some ibuprofen, shut the lights, and took a nap for an hour.

I was good to go for the rest of the night. And this strategy works a lot of the time, even if this happens in the course of getting through a regular day, not just some special circumstance.

But sometimes, this strategy doesn’t work.

In those cases, I’ll go back to bed once, then go back to bed again, and then I will probably end up staying in bed all day, if I can’t shake off feeling bad. I don’t like doing that, but sometimes, no matter how hard I try, I just can’t rally. I think it’s important to know your limits and to listen to your body.

I also think it’s good to power through if you can, but allow yourself to be open to the possibility that you might not be able to power through, and that you might need to cancel or reschedule commitments.

The reality is that there has to be a balance.  I’m learning that I can’t do everything, and that I need to pick my activities based on how I feel and my energy levels.  Obviously, this changes day-to-day, even hour-by-hour.

So when I feel good, I try to take advantage of that, but I also try and remain realistic, and not overdo it.  When I don’t, I do my best to rally, but I don’t beat myself up if I can’t.  There’s nothing worse than trying to rally, starting to feel bad again, and not be in the position, place, or situation where I can rest or lie down.

When I first got sick, I didn’t really have any sense of balance.  But the longer I am sick, the better I get at knowing my body and understanding the fine line I walk between productivity and overdoing it.

Of course, I still make mistakes in this regard, but I’ve learned that if I give my body some time, it usually comes around.  And when it doesn’t, well then I have to be adaptable.

So how do you rally around RA?  What tactics do you use to take advantage of the good days and not beat yourself up about the bad ones?

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Ava
    5 years ago

    What a great post, I too, try to be as positive an take advantage of any good day that I have.. I have learned over the years to listen to my body, because it will tell me when I have overdone, or just plain can’t do anything… I try not to beat myself up, but it is hard to do.. such as, when my grand daughters have some activity and I want to go, but my body says no.. I have to listen now, an try not to beat myself up so bad…It is hard to do, but sometimes you just cannot do want you want or need to do…On good days, I will try to take my dog for a walk as far as I can, or swim, or clean my home…anything that I have been waiting for my body to let me do..I do have problems with overdoing it, because it just feels good to be able to do something… but Im learning…So on the good days, try to be as active as you can, be as positive as you can..This disease can rob you of this, but we must push on until there is something found to help us better deal with it…May you all have a good day, an do something good for yourself today…

  • Leslie Rott moderator author
    5 years ago

    Thank you, Ava!

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