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BikerRn

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"This last few days so horrible painful to get out of bed notice taking longer to be able to move was taking Rituximab IV for RA and MG Musk and now labs some I may not have MG but I know the IV was working and am taking Hydroxychloroquine 400mg daily since my labs improved they want to wean me off both stop IV injections notice feeling worst and wearing the other had pain increases my Rheumatologist believes I should take nothing I just lost my other MD this one new and I don’t have all the symptoms and so I get this feeling she don’t believe me asked about Fibromyalgia she really don’t seem interested problem is only Rheumatoid MD close by at all and hard to see any so my questions are should I just give up stop meds and let my body fall apart since no one really interested. I also have EMG showing moderate lost muscles and feeling in legs and left arm with back surgeries. Cervical damage also unable to operate unless live threatened. Do everything I feel I’m being told back problems so too bad not anything we can do. If the meds helped and I paid for them why take away relief "

  1. Thanks for sharing and reaching out. Sending positive thoughts your way for some relief and clarity on how to proceed. Did your new Rheumatologist explain why they want you to take no treatment medications? I'd encourage you to be persistent in communicating any new, changing or concerning symptoms. It's important to discuss the pros and cons of treatment with your doctor and feel heard. Wishing you some relief ahead. Best, Kelly, Rheumatoidarthritis.net Team Member