"I am very happy to finally find a community that actually understands what I'm going through. I am in an extreme amount of pain on a daily basis, not to metion the fatigue! So many days I don't want to even get out of bed cuz I'm in pain and feel sooo crappy. I just wish my family and freiends could understand how I feel. Its hard for them cuz I look llike I feel ok. On the inside, I'm dying!!!!!"