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waywayupnorth

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"Hi all. It feels good just to be here with you. Today was a big day. I decided to stop lying to myself, my family and my doctor about "being fine". I was diagnosed over a decade ago and have been on Enbrel for most of that time. (I tried a couple of other meds first, briefly.) I do not show the kind fo joint damage that is typical with RA, but deal with soft tissue, connective tissue, etc. problems. I have had problems with my oxygen level dropping, even though I have had a thorough pulinary and cardio examination. I am in pain. Some days, it is just the pain in the morning and then after a day at work. Most days, it is pain all the time. I've been telling everyone (including myself) that I am just fine. I am out of shape, though I used to be active. I have a hard time getting active now because of my breathing issue and the pain. I'm ready to face it: I'm not doing fine. I hurt and I need more help. I don't know what kind of help that might be, but I'll figure it out. It takes many months to get an appointment with the Rheumatologist, so I'll do what I can until I can get in. I just needed a place to "come out": I am not fine. Thanks for bearing with me."

About waywayupnorth

  • Member Since 2018