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Are you happy with your treatment plan or still searching for the right one?

Are other RA people happy with their medication cocktail, still searching or rely on pain meds?

I have been in treatment for RA for 6 years. I continue to work with my rheumatologist and have tried all biologics available. I haven’t had any positive results and right now I am infused with Rituxin for 2 months and patiently waiting for things to slowwww down. However I’ve had to add prednisone to my daily dose, I have new bumps on my wrist and I don’t feel better. My goal has been to catch the RA early to prevent joint damage but I have been unsuccessful.

Community Answers
  • Richard Faust moderator
    7 months ago

    Hi Jules. Sorry you have been having so much difficulty finding a treatment. You may have already tried this, but thought this article on combination therapy might be of interest: Also, there are new biologics regularly coming to market that your rheumatologist may be able to inform you about (I recognize that this option may not have great appeal after failing the others, but some have different inflammation triggers thatthey target). Hoping you get some relief soon. Best, Richard ( Team)

  • Jules58 author
    7 months ago

    Hi Dan thanks for the response. I have gone to a pain management dr and was so upset. He did not give me a choice he just put me on methadone and he gave me some nasty injections in my neck. The drug didn’t work and it made me tired and sick. When I called his office the nurse told me I shouldn’t ask for any specific drug since he would think that was my reason for seeing him. I never returned or took methadone ag. I also have gone to a medical marijuana dr.and have my card, however all appointments or purchase of the medical stuff is not covered and very expensive. Believe me I try everything since my life and health is important to me. I’m not ready to give up Dispite the long periods in the past were my pain was over top. I took a bottle of Aleve once a week and my CRP’s were 157. I’m better but my RA isn’t under control. Thanks again. Jules

  • Jules58 author
    7 months ago

    Thank you for your insight. I just met with a new RA doc and I will see what he offers as treatment.

  • 2mra
    7 months ago

    Hello Jules:

    I’ve had severe RA for 35 years. I did well with the older drugs, from 6 months remission to 5 years. Back on one again. I tried the biologics but none worked for me. I’ve read about so many others having the same negative response.

    I was feeling okay for about 1 1/2 years but I’m starting to hurt more again. Not sure if it’s the cold weather or the cocktail is wearing down. Oh well, that’s RA. I hope that you do well soon.

  • Daniel Malito moderator
    8 months ago

    @Jules58 I have had RA for over 30 years now, and I never found a drug or drug combination that worked for me, unfortunately. I see a pain specialist that has changed my life, though, He worked for two year to find a cocktail that let me have quality of life but also didn’t knock me out every time. I would think about maybe seeing one if you are inclined. Keep on keepin’ on, DPM

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