A new “wrinkle” to my journey with RA….vertigo

For over a year I’ve been flaring off and on then about a month ago I ‘got to’ experience 2 ambulance rides to the ER (with the last culminating into a 2-day stay) because my BP was all over the map. I’ve never had BP issues before. In the hospital, I had every test to make sure it wasn’t my heart of a circulatory issue. I tested out “fine”. Docs were stymied but decided it might be a toxicity to a drug I was on. (?????) That is actually inconclusive. Once I was home and thinking I was feeling better some of the symptoms returned then it dawned on me that I was experiencing vertigo (BPPV…google it) which I’ve had 2 or 3X in the past. I’m currently going to O.T. due to pain in my shoulders so the P.T. did the bppv manipulation which gives temporary relief. In the meantime, I take OTC motion sickness medication. I’m so sick and tired of feeling this way. Weeks of it!!! Has anyone else had vertigo-related to RA?? My current rheumy isn’t sympathetic to most of my issues so I’m plugging into a new one on 8/3 and hoping with his ‘new eyes’ we can figure some things out. I’m on Medicare so I don’t qualify for biologics…well I do but our co-pay is way extremely high for our budget so that’s out of the question. Before ALL of this started I had trouble relating to posts of other RA sufferers…. that’s no longer the case. My 5 yrs. since diagnosis, it would seem, was a blessing—a lull before the storm!!! My life before was limited and now it seems to be more so as being dizzy and loopy-feeling doesn’t encourage me to activities.

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