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Balance Joy with Pain

I am 30 years old and recently diagnosed with RA. It started with pain and stiffness in my fingers and now the RA symptoms have expanded to my wrists, fatigue, and in my feet. Along with the RA I was born with a club foot and my doctor says my club foot is a residual club foot with hind foot arthritis and he wants to do a triple arthrodesis. Yikes! A mother of a 3 year old this is a lot to balance. Just today my 3 year wanted to play squirt guns something I remember doing a lot as a child how hard it was to keep my composure because after a few minutes my fingers started with the pain and stiffness. I have been on plaquenil and prednisone but I still get a lot of flares. My rheumatologist wants to put me on methotrexate however I have heard too many bad things about it. I believe it is very hard for my husband to understand I feel like I am complaining or weak because I will do something like peel potatoes and say my hands are killing me. I am so used to doing stuff myself and now I have to rely on someone or just not have it done. So hard to balance joy with pain.

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Comments

  • Jenn Lebowitz
    4 years ago

    Hi 1th8c7h,

    Thank you so much for sharing your story here. I am sorry for your recent diagnosis, and for the challenges you’ve been dealing with lately. Please know that you are not alone, and that we welcome you to express your thoughts and feelings here with the community, any time.

    While you may get more community feedback here regarding treatment decisions, I see that you have also posted in our community forums – I want to commend you on being so proactive, and do hope you get the feedback you are looking for from the community!

    Lastly, I noticed you mentioned household responsibilities such as peeling potatoes also being a challenge. I thought you might find this article on community ideas for household chores helpful: http://rheumatoidarthritis.net/living/community-tips-chores-errands/.

    Again, thank you for being part of this community, and we welcome you to post here any time.

    Warmly,

    Jenn (Community Manager, RheumatoidArthritis.net)

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