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Confusing Diagnoses

After two years of testing and drug trials etc… I am still not exactly sure just what it is I have. At one time I was diagnosed and treated for Rheumatoid Arthritis and now it is Psoriatic Arthritis and one other type whose name escapes me. I have no skin disease though and nothing shows on tests so I am sero negative. I also have restless leg syndrome pretty badly and peripheral neuropathy. I also have a bad shoulder that has never recovered from 3 rotator cuff surgeries.

But heck, I am 72 years old, still ride English Saddleseat horses in horse shows across the Midwest, travel, and garden. I finally was forced to retire due to pain at the end of last year.

I am eternally grateful for drugs including oxycodone and diazepam. My rheumatologist and I have tried just about all of the non biologics and a couple of them have worked for the pain in my hands. But not for the pelvic and hip pain which is a constant. Prednisone has saved my sanity but finally have cut back to 5 mg and will probably be on it for the rest of my life.

I am also grateful for my PCP. He is incredible and will try most anything. He also is a detective when it comes to figuring out what is going on. He says I am the patient with things from hell. His philosophy is that if I do not have to be in pain I should not be.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Kelly Dabel moderator
    3 years ago

    Hi llzelm, Thank you so much for taking the time to share your story. You are not alone here. I’m sorry that you have been through so much and still aren’t sure what you’re dealing with. Glad you have supportive doctors on your team and that you are still able to get out and ride in horse shows! In addition to speaking with your doctor, this article on Pain Management may be helpful to you:
    Please let us know if you have any questions we can answer, we’re here to support you. Kelly Dabel, RD Team

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