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Hate RA and OA

Hi all! My name is Caroline and I’m 41 post menopause for 8 years. Since going thru menopause, I’ve developed RA and OA as well as an under active thyroid plus I live on my own. I noticed problems about 6 months post op. Fatigue was an issue. My hands, back and knees, well everywhere, hurt so it was a trip to the doctors. Blood tests were done. Had to go for mri scans, cat scan, and to my doctor, who I’ve known for 20+ yrs. Well you have an under active thyroid RA and OA so I asked so what’s the good news lol. As the years have gone on, the pain has got worse. I have to walk with crutches. I can’t stand for too long so cooking is becoming a major issue. Food shopping, I have to do online as I can’t walk to the shops and get shopping home. The government in their wisdom decided I didn’t need my mobility car as I could walk 20 metres with crutches. Which was the distance between my house and where my car used to park. My hands and toes are starting to bend to one side. I’ve got nodules appearing on my toes, especially the big toe. I’m pretty much house bound. I struggle to do the simplest of task. I don’t sleep to good at night so I’m tired during the day even if I don’t have chores to do. People say it’s only arthritis it can’t be that bad. If only they knew.

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  • Lexishaley
    4 years ago

    Hi Caroline!! Yes having RA and OA sucks! I have both as well. I also have Interstitial cystitis (IC), degenerative disc disease, 5 back surgeries. Pain. Constant pain. It’s horrible.
    You didn’t mention any meds that you are on, I’m wondering if you’re taking a biologic or dmard? They help a lot of people. But, It can be trial and error to find the right combination of meds that work for you. I hate it when people say “it’s only Arthritis”. Makes me very angry and upset. A lot of people now call it rheumatoid disease (RD)instead of arthritis. I think there should be a big push to change the name officially to RD, across the board with all health practitioners, insurance companies, etc.
    Thanks for sharing your story!

  • caroline author
    4 years ago

    Hi lexishaley atm I’m just on gapentin for pain nortriplyne at night and levothryroxine for thyroid the doctor doesn’t want to put me on anything for the RD. As we r trying to get level right for thyroid as my heart either beats to fast or to slow. It’s a pain in the a**. I don’t get much support from family due to other family issues. I’m pretty much house bound now I live on my own so don’t have much company other than fb or twitter lol. I’ve heard of methotrexate for treatment of RD but that’s all we have discussed that was with my physio. I shall b going to the doctor to get on something for RD as it’s getting more painful now.

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