However. . .

I havent posted here in a while, things have been fairly quiet with my RA. That is not to say that I have been in remission, just that things have been fairly quiet. “However. . . .” (Seems like those “howevers” have a way of cropping up when we need them least.) I had a problem about 6 months ago with mouth sores that my Rheumatologist blamed on my MTX. He took me off it immediately. I have been on Orencia infusions (My third biologic) for close to a year along with Sufasalize. My pain levels and stiffness had been ramping up since stopping the MTX. I was scheduled to see my doctor for my regular 3 month visit last week. I got a letter about 10 days ago informing me that he was leaving the practice 2 days after my scheduled appt. That wasn’t what I wanted to hear. He has been my doctor since my diagnosis 3 years ago and he is a good one. At the visit we wished each other well and he instructed me to start the MTX back at a lower dosage. 24 hours later I got a call from his office telling me that my liver enzymes were elevated and NOT to start the MTX. My next infusion of Orencia was scheduled for Feb 1st but that has been cancelled also due to the doctor leaving town. However. . . I don’t really want to take it anyway with the bad enzyme numbers so everything is on “hold” (except the Sulfasalizne) until my Rheumatologist’s replacement gets here which is supposed to be sometime around the middle of February. The next few weeks should be an interesting time to say the least. There is a shortage of Rheumatoligists in my area so changing to a different practice is not an option. However. . . I will suck it up and grab hold for the ride no matter how bumpy it gets because that is what we do. No surrender and no crying the blues. I have come too far to give an inch in this battle with RA. Life is good and I am blessed!!! – Dave

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


View Comments (1)
  • Erin Rush moderator
    1 year ago

    Oh goodness, Dave. That is a pretty serious “HOWEVER”! I am so sorry you are dealing with medication issues AND the departure of your rheumatologist. I know losing a trusted part of your medical team can be pretty painful and frustrating. I do hope the new rheumatologist is a good fit for you.

    I don’t blame you for not wanting to start back with Methotrexate at this point.

    I sincerely hope the next few weeks are surprisingly clam and pain free for you and that you are able to see the new rheumatologist and find a new treatment plan.

    Good luck and thank you for sharing!

    I hope your next update is “however” free!

    Best, Erin, Team Member.

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