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I am not American but Australian with RA

I am nearly 63 and have had RA since I was 16 although it was not diagnosed until about 14yrs ago. I was told when I was 16 I had Rheumatic fever.
I spent years every morning with my husband walking me up and down the house trying to get my legs walking.
I have had both hips replaced and had quite a few bone breaks because I have been taking low dose cortisone for many years. With Arava, cortisone, and methotrexate my painful joints have been managed well.
In the last few years I have been informed that RA has caused a melt down of my cornea, I have had inflammation around the heart a couple of times, now I am having heart attacks and the cardiologist has no idea why but seems to think that it is to do with my RA.
I have had 2 angiograms in a month with nothing showing up there. They know that they were heart attacks by the triponen levels in the blood. Next I am going to have a 4D MRI to see if that can pick anything up. I am having an attack about once a fortnight.
Is anyone else experiencing this, and if so what has been done to help.

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Comments

  • Mariah Z. Leach moderator
    4 years ago

    Hi Susan ~
    Thank you for taking the time to share your story. It sounds like you have really been through a lot, though I am glad to hear that you have found a combination of medications that helped! RA can cause inflammation in other parts of the body. The best thing you can do – and sounds like you are already doing it – is to make sure you are seeing a specialist about the issue. It might be a good idea to get your cardiologist and rheumatologist working directly together to help treat you. Best of luck to you! Please hang in there and remember that we are here to support you!
    ~Mariah~

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