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Mama! Mama!

It was an early summer morning in 1978 when I yelled out to my “mama”. On wakening I could barely move. I yelled out because it hurt to move, but it was more out of fear than anything. I had gone to bed the night before with no pain. I was an active girl, a tomboy in a lot of ways. My identical twin sister, and another sister who was only 15 months younger, would spend our waking moments outside playing baseball, climbing trees, traipsing in the woods, wading in the creek, riding bikes and swimming. This outcry put me in the car with my mom taking me to the family doctor.

This led to a weeks stay in the hospital for tests. At the end of the stay I was diagnosed with Juvenile Rheumatoid Arthritis or JRA. It is most known by Juvenile Idiopathic Arthritis or JIA today. I was referred to a Rheumatologist.

And so begins my story. I am 48 now. I hope to share my story along the way here. Not all at once as there’s so many years to share. I always told myself through these years that there had to be a reason for this. Maybe this is it. To tell all of you that life is precious. Even though I didn’t believe this at one time. You are precious.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • rockcandi
    1 year ago

    Although I’m extremely grieved for you that you have JRA and had to start dealing with it at such a young age, it does help me when I read stories that let me know I’m not alone. So thank you for sharing and I look forward to reading more of your story! I was dxd at a young age too, 6 years old, but went through many years of no major flares and had to start all over in my 20s to get diagnosed again. I’m 36 now and was diagnosed again with JRA at the age of 30, along with Lupus and Sjogrens and then with Fibromyalgia at the age of 33. Thanks again for sharing! Hope to read more soon.

  • haoc author
    1 year ago

    Thank you! I’ve been slow in writing more but hope to soon. Thank you for your positive feedback. It certainly does help to know you’re not alone. Gentle hugs.

  • Monica Y. Sengupta moderator
    1 year ago

    haoc, Thank you so much for sharing part of your story and I am glad you received a diagnosis relatively quickly.

    We would love to hear more of your it if you feel comfortable sharing. Thank you for being part of our community!

    ~Monica ( Team)

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