New sero status

Well, when I first posted on here (Lady from UK) I thought I was seronegative – as that is what I was at diagnosis in 1987. After all those years I’m now seropositive!! Anti CCP is more than 340 and my Rheumatoid Factor is 288.9. Currently taking 20mg Leflunomide (Arava) daily with 30mg Prednisolone. Started on 40mg the had 3×1,000ml infusions of Methylprednisolone. I’m supposed to be going back on 20ml Methotrexate injections but haven’t heard from the company involved yet!!!

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  • Shirley Sanders
    4 years ago

    Hi Kathleen,
    Just wanted to let you know that I too was on Arava and the side effects were horrendous. I was on it for maybe 3 months when my blood pressure skyrocketed. I am now on blood pressure meds and will be for life. Then I suffered renal issues. This caused me to be unable to keep food in and I lost 20 lbs in 1 month. I hope you fair better on this medication then I did. My rheumatologist said this is her last medication as it has she has found it to have too many side effects.

  • Mariah Z. Leach moderator
    4 years ago

    Hi Kathleen~ Thanks for sharing this update on your diagnosis. It is interesting how this disease can change over the years. I truly hope that the new treatment regimen works well for you! Best of luck!

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