RD

Hi I am a 78-year-old great grandmother. I have fibro, RD, 4 different arthritis’, low thyroid and a few others.
I suffered with fibro for 25 years and low thyroid as my doctor didn’t believe in them. I was the yes you have it 8 years ago. It was a long painful life because family and others thought I was just trying to get others to feel sorry for me. That was not true, I just hurt really bad.
One year and half I found out I had RD and the pain is so much worst I wonder if I can keep on going. At last my family believed me as there is so much information out there and their friends have known others with it. Am I hurt that nobody knew I would never lie about, YES. I hide the hurt but it will never go away.
Now I have a good Dr. that is trying to help me. This does not go away and the hurt will never go away. I try very hard to be happy and keep going. The only relief is when it is time for bed and I can lay down. Now it is starting to hurt in bed. The hip hurts and others when I lay down.

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Comments

View Comments (7)
  • Richard Faust moderator
    2 years ago

    Hi again sharoncookie57. I understand that the thought of needing a wheelchair can be scary. However, it may not need to indicate a loss of freedom, and in fact can mean the opposite.

    My wife, Kelly Mack (a contributor here), has had RA for most of her life and has used a motorized chair for years. In this article she writes about why it was one of the best decisions of her life and the opportunities it created for her: https://rheumatoidarthritis.net/living/staying-mobile/.

    Please keep us posted on how you are doing. Wishing you the best. Richard (RheumatoidArthritis.net Team)

  • sharoncookie57 author
    2 years ago

    Every time I do anything like a little house work I hurt for hours and sometimes days. So sad.

  • Erin Rush moderator
    2 years ago

    I am sorry, sharoncookie57! I know so many of our members can relate. Please know you are not alone! Thank you for sharing. We are glad to have you here. Best, Erin, RheumatoidArthritis.net Team Member.

  • 2 years ago

    I’m so very sorry to hear about anyone that has suffered the way that you have, for so long. This is a disease that people generally do not understand and it makes getting support difficult, for that reason. As I look around, more and more people are afflicted with these types of disease. So, like Richard Faust said, you are definitely not alone.

    The fact that you have had these diseases for so long means that you are stronger than most. I pray that someone close to you will show you the kindness and understanding that you need to keep moving forward.

  • sharoncookie57 author
    2 years ago

    My husband finely try’s to understand and help but I know he gets tired of me in pain. I sometimes have to go in a wheel chair because the pain is so bad and it hurts to walk. That is something new. All kinds of new things are happening so fast. I guess I am in the latter stage. I don’t know much about that but it is hard to accept as I don’t know much about this. Thank you for your words

  • Erin Rush moderator
    2 years ago

    Thanks for sharing, DesertStormTrooper. I always find your posts to be informative, insightful, and compassionate. Thanks so much for being a part of this community! Best, Erin, RheumatoidArthritis.net Team Member.

  • Richard Faust moderator
    2 years ago

    Hi sharoncookie57. Sorry to hear that you are having these difficulties, but glad to hear that you finally have a good doctor and that your family has come around to believing you. Also glad that you are reaching out to a community like ours for support and information.

    Sometimes the emotional issues associated with a chronic condition like RA can take a backseat to the physical, but taking care of yourself emotionally and mentally is vitally important. Here is an article on managing emotional problems and stress and one on not neglecting mental health:

    https://rheumatoidarthritis.net/living-with-ra/managing-emotional-problems-and-stress/

    https://rheumatoidarthritis.net/living/dont-neglect-mental-health/.

    Hopefully your new doctor will be able to help with getting you a pain treatment regimen that helps you. This article from our editorial team looks at RA pain, with some treatment information:

    https://rheumatoidarthritis.net/symptoms/joints-pain/.

    Please know that many in the community understand what you have gone through and are going through and are here to offer support. RA can be an unrelenting condition, but better days could also be ahead. Keep us posted on how you are doing. Wishing you the best.

    Richard (RheumatoidArthritis.net Team)

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