Did you really say that ?

It has been 8 months since I was told I had RA. I read the post here daily and it seems so different in my world. Oh, I have the pain, fatigue, most days every part of my body is at less twice its normal size. The meds are not working and we are trying something new and you all know it’s like starting all over at day one. But, I read so much about the great support everyone has and I started to wonder things like is it just my family that don’t get it.

It’s leaving me wondering am I the only person who hears things like.
Why can’t you drive to the mall?
Really there are no clean towels?

I still work 70 hours plus a week and try so hard to do all the things I have always done. But I find things everywhere I just did not get done and what I don’t see I am reminded of. My family doesn’t get it not because they don’t love me or they don’t want to get it. I really believe it’s because they can’t see it. No matter what you do, you can not see another person’s pain. The pain in my body is the pain that causes me not to function is equal to the pain in there hearts when I can’t do things with or for them. My fatigue that makes it hard for me to be able to do the littlest things is equal to there frustration with what I know didn’t get done. Oh, in the end, they all say don’t worry about it, we will figure it out but I can see the pure hurt in there eyes that just screams I don’t understand why everything has to change.

I know I don’t understand all of this and I have a lot to learn but what I have learned in the last few weeks is just to ask… Did you really just say that.

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