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Understanding & Consideration

Two and a half years ago when I turned 26 I was diagnosed with RA. It started with all the joints in my hands and the pain got so bad until I had to get medication to be able to use them again. Now it’s right through most of the joints in my body but my hands and feet still remain the worst. Each day there is new challenge to deal with. In my hands and feet I’ve got Raynaud’s disease that causes pins & needles, numbness, very low blood circulation which makes them turn blue especially in winter and rainy weather. With all the stress because of added depression and the long term use of medication I now have a hernia and can’t keep any food in my body. Those are only some of the symptoms. Constant pain and fatigue, for some people to understand this illness they can’t see is very difficult. Especially in your work environment. To have RA (the invisible illness) is no joke.

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Comments

  • W. Casper
    5 years ago

    Hang in there. It’s takes so much time for find the right doctor and the right meds. Don’t let it get you down emotionally like it does physically. It’s so hard because you are young. I am 36 and have suffered for 6 years. It’s ups and downs with pain and emotion. I get so frustrated because I can’t walk sometimes, but just take care of yourself as needed each day and it will get better with the right doctor and the right meds. Don’t give up.

  • Mariah Z. Leach moderator
    5 years ago

    Hang in there and please do let us know how it goes! Sometimes I take things one day at a time, sometimes it’s more like one hour at a time – I just try to keep looking forward!

  • Mariah Z. Leach moderator
    5 years ago

    Hi Estee ~ Thank you for taking the time to share your story. I was diagnosed at 25 and so I can totally understand what you are going through trying to adjust to RA as a young person. Please remember that, though unfortunately it won’t necessarily make people be more understanding with you, there are laws in place to protect you from discrimination in the workplace. I hope you are working with a good team of doctors and are able to find a treatment plan that helps you feel better soon. In the meantime please remember that we are here to support you! Hang in there!

  • Estee author
    5 years ago

    Dear Mariah ~ Thank you so much for caring and for your advice. The future scares me because everything is just getting worse at the moment. I am seeing a doctor on 17 November and then again on 3 December, either they will change my medication again or I’ll have to go to hospital for further tests, but I will let you know how it goes. Thanks once again ♥

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