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Anyone on Xeljanz ?

  • By Briana Doran

    Hi there ! I’ve had RA for 40 of my 42 years. Severely. I’ve been on probably every med you could name. Now I’m on Xeljanz; for almost 2 years. I was wondering if anyone else is on it, and if they’ve had any side-fx or noticed any little issues. For example, I think my hair has been falling out much much more the longer I’ve been on Xeljanz. The biggest event was in May, when I had flash pulmonary edema. My pulmo is blaming the Xeljanz, but we can’t/don’t know for sure. Because of that, I am now on half the dose I used to be on, just to see and to be safe. I would really appreciate any other insights into this med. Thank You !

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  • By Jenn Lebowitz

    Hi Briana-

    Thank you so much for your post. While you may get more community feedback, I thought these pages on Xeljanz and Xeljanz side effects might be helpful: https://rheumatoidarthritis.net/treatment/xeljanz-reviews-how-well-does-it-work/ and https://rheumatoidarthritis.net/treatment/xeljanz-side-effects-and-safety-review/. I hope this proves helpful! We’re so glad you’re speaking with your doctor about it, as we always recommend doing so any time new or worsening symptoms or side effects come up. Please feel free to keep us posted on how you’re doing!

    Best,
    Jenn (RheumatoidArthritis.net Team)

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  • By Mariah Z. Leach Moderator

    Hi Briana~

    I have not personally used Xeljanz, but I do find that a folic acid supplement seems to help a lot with hair loss when I am taking methotrexate. Perhaps that would be something worth asking your rheumatologist about?

    Best of luck to you!

    ~Mariah~ (Site Moderator)

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