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Treatment

Cimzia

  • By Dave

    Anyone here on Cimzia? I was on Humiria up until a few weeks ago. It just wasn’t working that well anymore. I know that every case is unique and everyone responds differently. Just curious if anyone has had any experience with Cimzia? Dave

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  • By Jillian S Moderator

    Hi Dave,
    It is good to hear from you. Have you started taking Cimzia yet?
    In addition to the feedback I hope you get from other members about this medication, I wanted to provide you with a bit of material from our site:

    Cimzia Overview: https://rheumatoidarthritis.net/treatment/cimzia-reviews-how-well-it-works/

    Cimzia Side Effects & Safety Profile: https://rheumatoidarthritis.net/treatment/cimzia-side-effects-safety-profile-review/

    Additionally, to increase the feedback you might get, feel free to post your inquiry on our Visitor’s Posts on facebook: https://www.facebook.com/RheumatoidArthritisDotNet/posts_to_page/

    I hope you find this info helpful. Let us know if there is anything else we can help with.

    Best,
    Jillian (Rheumatoidarthritis.net Team)

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  • By Mariah Z. Leach Moderator

    Hi Dave ~

    I don’t have experience with Cimzia (yet haha) but I am currently on my fourth biologic and I am happy to say that it I am doing better on it than I have done since my original diagnosis! So while the process of trying new meds can sometimes be long and frustrating, it may still be possible to find the right one for you that will greatly improve your quality of life. I’ll keep my fingers crossed that’s Cimzia for you!

    Hang in there and remember that we are here to support you!

    ~Mariah~ (Site Moderator)

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    • By Dave

      Thanks Mariah! Glad that you are doing well. This is my second biologic. Humira worked wonders for me for about 3 months and then things went bonkers again. In the meantime, I retired and the co-pay on Humira with Medicare/supplemental insurance is astronomical. Thus the switch to Cimzia. We will see how it works. I appreciate the support!! Thanks again, Dave

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    • By Jillian S Moderator

      Dave,
      It’s good to hear back from you.
      Glad to hear you got your initial injection. We look forward to hearing how you feel on this new medication and are crossing our fingers that it works well for you.
      Thanks again for being part of the community.
      Warmly,
      Jillian (Rheumatoidarthritis.net Team)

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  • By 1keylimepie

    Hi Dave and everyone 🙂

    I am new to this site. I just received my second set of injections of Cimzia also. ( total of 3 weeks on it. ) I was previously on Humira that I loved but after 3 years on it, started to get weak on me. So My Rheumy suggested Cimzia. Was wondering how you are doing on it? I have never felt worse….. Thinking this new med might take a while to kick in ?? Or worse, not work at all ?? I’m so scared and feel powerless with uncertainty. Any info. would be great. Thanks 🙂

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  • By Dave

    Welcome, 1keylimepie! It is good to have you here! I have been on Cimzia about 2 1/2 months and honestly it is not working very well. I am giving it a while longer to “kick in” and then will discuss other options with my Rheumatologist. I am kind of new to this whole scenario. I am a little over a year post-diagnosis and if I have learned anything it is that any new treatment is a crapshoot. There are no certainties except that RA is a handful and it certainly can be scary at times! There are good caring people here who can relate to what we go through and we are pretty good at encouraging one another. They have been a big help to me! I hope that the Cimzia works for you and that you get some relief! Dave

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  • By Mariah Z. Leach Moderator

    Hi Dave ~

    Sorry to hear that the Cimzia hasn’t been a better solution for you! Sometimes they do take a while to start working, but you are probably right to start considering discussing other options with your rheumatologist. I’ve been through a couple of biologics myself that never really worked – but the one I am on right now is making a huge difference in my quality of life! So I truly hope that you are able to find one that works for you soon!

    ~Mariah~

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  • By Mariah Z. Leach Moderator

    Hi 1keylimepie ~

    Welcome and I’m glad you have found us! I had a similar experience with Enbrel that you did with Humira – it worked well for years and then just sort of…stopped being effective. So in that case it does sometimes make sense to re-start the search for something better. Unfortunately it can sometimes be a long and frustrating process to find the next thing – as it often takes a while for these meds to start working. 3 weeks is probably not quite enough time to know for sure, but if you are really struggling I recommend letting your rheumatologist know. He/she may be able to provide you with some interim strategies while you wait – and/or start thinking about what the next step might be. In the meantime, hang in there and remember that we are here to support you!

    ~Mariah~ (Site Moderator)

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  • By 1keylimepie

    Hi Dave and Mariah 🙂 Thanks for writing back! Ok so I went to my Rheumy feeling NO relief at all from the Cimzia * 2 starter doses * which he initially got me so excited to try out because it’s in the same (biologic class) as my beloved Humira ane Embril which have worked wonders for me in the past. Been fluctuating on and off for 9 years now with them. Tried Orencia & Actemra they didn’t work at all for me….pffftttt… He told me that I’m the only patient that he has that is the hardest to figure out medically lol! yeah….. So anyway he saw me and said ugh your all puffy from the prednisone and that I should be seeing some kind of relief from the Cimzia now?? I’m taking more of the prednisone to help with the pain… 22 mgs per day. and said get back on the Humira now! So It’s been 3 days and pain is finally subsiding a little day by day 🙂 Yes, Mariah I do agree that meds. stop working, hoping these almost 7 weeks of being off the Humira will start becoming effective for me again 🙂 Dave please keep me posted on how you are doing with the Cimzia or if you decided to try something else. Good luck to you! Nice to have support here :)))

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  • By Dave

    Hello, 1keylimepie! Sorry that things are not going well for you. The Cimzia is working pretty well for me. I haven’t seen the dramatic improvement that I got for the 1st couple of months on Humira (which didn’t last very long at all!) but things are at a level that is manageable. Here’s hoping that you get onto a treatment plan that gets thing under control!

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  • By 1keylimepie

    Hello 🙂 Thanks for the kind words. Gotta keep on trying! lol Praying this Humira can give me more relief like it did in the past. Been so long, don’t really remember how long it took to start feeling better, believe pretty quickly.
    That’s great! I’m very happy for you. Yes, manageable is good! and hopefully will keep on improving for you 🙂 Keep us updated on how your feeling. Thanks Dave!

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  • By Mariah Z. Leach Moderator

    Hi 1keylimepie ~ Sorry to hear that you are having trouble identifying a medication that works. That can be such a long and frustrating process – and often discouraging. I hope things continue to go in a good direction with the Humira!

    Dave ~ Glad to hear that the Cimzia is working pretty well!

    ~Mariah~ (Site Moderator)

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  • By Dave

    Update: I have now been on Cimzia for about 5 months. Initially I didn’t think that it was going to work for me but things have changed dramatically for the better in the last couple of months! At this point in time I am doing really well. Another mountaintop experience in this roller coaster ride called RA. Will it last? There is no way of knowing, I just know that there are no guarantees. I just live in the present and let tomorrow take care of itself. Life is good and I am blessed!!! Dave

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  • By 1keylimepie

    That’s wonderful news Dave ! 🙂 You were very patient, that’s awesome ! You’re right, RA sure is a roller coaster…. Take things day by day.

    I myself, got off of the Cimzia after 2 months because My Rhumy said that It didn’t look like it was doing anything positive for me…. blah…. Went back to Humira and it helped somewhat until now… Feeling back to terrible and going to Embrel * which had worked for me in the past * So…… lol :/ * Trying to keep positive thoughts and spirits *

    Wishing you lots of luck !! Keep us posted on how you are feeling 🙂 Good to know that people can relate to me on this site and vise versa 😉 Have a great wkend. everyone!

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  • By Erin Rush Moderator

    I am so glad Cimzia is working well for you, Dave! That’s great news! I hope it continues to be a good fit for you and your RA. Thank you for the update. Have a good night. Best, Erin, RheumatoidArthritis.net Team Member.

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  • By Dave

    Update: When I last posted on this thread in October of last year I was well into a period of almost total remission. However. . . yep, you guessed it, it didn’t last forever!!! For the last month or so things have regressed. My pain levels are getting progressively worse and the “I don’t really want to get out of bed ’cause I know the next 2 hours are not gonna be fun” has reared it’s ugly head. I am close to my regular 3 month appointment with my Rheumatologist so I am just gonna ride it out until that time. At my last appt. I was almost totally symptom free and he was really pleased but the last thing he said to me was: “If you flare again we will figure something out.” Methinks he was trying to warn me that this probably ain’t gonna last, or at least being realistic about the situation. Oh well, Life goes on and I am thankful for the respite and will move on to the next step on this roller-coaster ride called RA. I will not give in. I will not let it win. I may get knocked down but I won’t STAY down. Life is good and I am blessed!!!! Dave

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  • By Eebtool

    Hi Dave,
    Hang on tight, well as tight as you can, as it sounds like you have been booked on the ride where your seat is in the coaster car with the square wheels.
    While you were up and riding on the high track, I hope you got to enjoy the views.

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  • By Dave

    Thanks Eebtool, for the encouraging word! I love the “square wheel” analogy. Never heard it put that way before! And yes, I enjoyed the view tremendously while it lasted. This crazy ride we are on is and always will be filled with ups and downs, peaks and valleys and I have been on it long enough to learn to enjoy the peaks and endure the valleys. I hope you are doing well at this time and that tomorrow will be a better day for both of us and everyone else on this crazy carnival ride. Be blessed! Dave

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