Good evening all, Im new to this forum and newly diagnosed with RA. I was diagnosed with fibromyalgia many years ago so I am no stranger to dealing with chronic pain. The majority of the time chronic pain or knowing that I have a chronic condition does not bother or get me down. However, what does bother is having to explain it to other people or other people knowing in general so I try not to tell anyone until I absolutely have to. Most of the time people just look at me like I’m crazy or say that I’m just making excuses to cover something that didnt happen or they will say you just need to diet and exercise. I know diet, exercise, and taking care of yourself in general is important for anyone whether you have a chronic illness or not, but it is also not a magic pill. One thing that bothers me the most is that I cant even talk to my own family about it. They often just tell me what I should be doing to make myself better and that I just put no effort into healing myself. The funny thing is they never stopped for two seconds to even ask what’s going on. They dont know that I have RA on top of fibromyalgia. Which makes all of this that much more annoying. To me, sometimes it feels like the emotional part of having a chronic illness is worse than the pain itself. I have no one to talk to it about.
Does anyone have a similar experience or have any advice on how to deal with this emotionally? I would greatly appreciate anything anyone has to offer.