How long have you had RA?


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  • #27637


    I am a 28yr old, newly diagnosed mother of two babies. I’ve already terrified myself enough reading things online about this horrible disease. But I’m curious as to how long some people here have had it? And if you have had it for a long period of time do you certainly suffer other ailments that go along with it/caused by it? I.e. heart, lung, organ issues? Other auto immune disease? Thank you for your time, and responses.

  • #27643

    Richard Faust

    Sorry to hear about the diagnosis Romomof2, but glad you have come to a place you can get information and support. Your fear is completely understandable, but know that you can be treated and live a full, happy life. One of our contributors wrote a ten part series of things she would tell her newly diagnosed self. I highly recommend the entire series. The first article is on receiving and dealing with the diagnosis:

    You ask about how long people have had the disease. My wife, Kelly Mack (a contributor here), was diagnosed at two years old and has had it for forty years now. She has seen many treatments over the years and how dramatically they have improved. In this article she writes about the evolution of RA treatments:

    Hopefully others can chime in with their experiences. Know that you are always welcome here. Wishing you the best. Richard ( Team)

  • #27664


    Thank you Richard, for the response. Your kind words and links to those articles are so much appreciated! Definitely feels nice to be able to read through these forums and see that other people are struggling as well. Currently I’m only on Plaquenil now and prednisone. Fearful to lose the prednisone. 🙁 thanks again! Means a lot!

  • #28343


    Hello I have had RA since I was 12 years old , I am now 46 so I have had it for many many years , luckily I don’t have the involvement of my organs , the RA is in every joint in my body . Overall I feel now that I am in my 40’s I am hurting more than when I was younger , I am s busy Mom of 3 children and don’t get to have a lot of rest , I think resting and listening to your body is important, this disease I can be very frustrating, but we make it through some bad days and good days , pace yourself , eat healthy, try to keep your weight down , more weight on our joints worse it is for us , start chiropractic care , natural supplements, take your prescription and you can totally live s great life 🙂

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