I’ll try to be brief. 3 years ago I woke up with stiff hands and knees, which I assumed was from spending the previous day in the garden. For several months before I had ben having severe pain in my thumbs. Which I attributed to too much crocheting. Instead of getting better, my hands began swelling, my knees always hurt, and my hips began give me problems. I saw the dr, they ran all the blood tests and after waiting 9 months for a Rheumy appt, I was dx with RA and put on Plaquenil. I can honestly say, 3 years in and I don’t really know much about RA other than it sucks.
Last year my daughter got braces. The doctor was mildly concerned with the jaw pain she had on a daily basis. She is a figure skater, does Jui Jitsu and Cross fit. BTW- I own a fitness center, and am a Personal Trainer and fitness instructor. We move our bodies A LOT! Last spring at the end of skating season, she complained about knee and hip pain, but after a few weeks of no skating it resolved. This January, her hips we causing pain 5-6 days a month, and she missed school from not being able to walk. You would think having RA I might think about that as a DX, right? Nope, I was sure it was from Cross Fit. and skating. Then the orthodontist did another bone scan on her jaw and told us to get her tested for RA. I still was in denial. I took her to 3 doctors since then, all 3 have dx’d her as having RA, and said we need to see the Pediatric Rheumy. Today her labs came in.
RF IGG is 9 (RR Units: <=6 negative, >6 Positive)
RF IGM is 15. (RR units: <=6 negative, >6 Positive)
RF IGA.is 5 (RR: <=6 negative, >6 Positive)
CCP- 16. (RR units: <=20 negative)
Sjogrens was neg. as was everything else, except for a low thyroid T3.
So my first question is what the heck is this reference range? My lab values have always been under 16 was negative. My 1st lab results was 12, so I was seri-negative. A year latter it was 16.
Has anyone seen a reference range of over 6 is a positive? Is it because of her age?
I will of course talk to the doctor, but we live in Alaska, there isn’t a Pediatric Rheumatologist here, so it will be a bit before we get any answers.