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neuropathy pain

  • By kary

    I have had RA since 2010. It took almost 2 years to get my meds where I felt better. During this time I managed to keep a full time job, doing heaving lifting and standing on my feet. Now I am 51 and work as a kitchen manager standing on my feet for up to sometimes 15hrs, doing heaving lifting and in and out of the freezer. I have had neuropathy in my feet for about 2 years but now all of a sudden it has gotten so much worse I cant hardly make it daily, its in my hands and I hurt all over. I am actully going to the doctor today to ask to be put on Leave of Absence to draw my short term disablilty because I cant stand to work anymore. I hurt all over every day almost like I have the flu, it hurts to walk and I feel like I am falling apart, and no one seems to understand. I am wondering if anyone else has had these problems. I am scared of not being able to work at all. I just dont know what to do and feel like I’m starting to get depressed. Any advice would be helpful.

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  • By Mary Blooms

    I have had it for several years. It was difficult for me to sleep at times due to the pain. Even a sheet was too much. I was finally prescribed Gralise. Three huge horse pill a day, but thy are coated with some substance that makes the very slick and easy to swallow!. Good luck.

    Mary

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  • By helldell

    A standout amongst the most common intricacies of diabetes is neuropathy, or harm to the nerves.Sometimes a mellow neuropathy will react to an over-the-counter medication, for example, nonsteroidal anti-inflammatory drug (NSAID)

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  • By MNwithRA

    I have had RA for 27 years. I developed neuropathy in my hands and feet over the last 9 months at the same time my lower back and neck became affected. Neurontin 300mg has helped me sleep cause it knocks me out. I can’t tolerate it in the day. But…ill take the sleep during the night. the night pain is the worst!

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    • By Ketki Gupte Keymaster

      Sleepy1 we’re sorry to hear that you’ve developed neuropathy over the last 9 months. Thank you for this discussion, everyone. I hope I am not interrupting your discussion, but thought I should share an article that one of our contributors has written about neuropathy and RA. It might be helpful to you all: https://rheumatoidarthritis.net/living/fraying-nerves/. Thank you all for being a part of the community! – Ketki (RheumatoidArthritis.net team member)

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  • By MrsTex50

    I have had RA for 2 years and also have neuropathy in my feet. It started with the soles of my feet feeling like there were burning. The neuropathy now is not only in my feet but seems to be moving into my legs (just below the calves). I’m taking leflunomide, sulfasalazine (nasty drug) and am new to Humira (3 doses so far). I wonder how much of the neuropathy is caused by RA and how much is from the drugs since both leflunomide and sulfasalazine list neuropathy as side effects.

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  • By GingerS

    I live with neuropathy pain of the hands and feet. My feet go from cold (freezing) to hot(burning up) intermittently. If my feet feel cold to me. I touch them and find out they are actually warm. Neuropathy sucks. It is painful but in a different way. At first I couldn’t even shake hands with anyone. That is all there is to it. lol. Back to the subject. I tried gavepentin without any relief. Then I was put on Lyrica. Which is extremely expensive. But I get mine from the drug company for free now. The Lyrica really helps the neuropathy pain discomfort. It has been a magic drug for me. Everyone is different with their responses to drugs. But I can say it is worth a try if your doctor agrees.
    Fyi: I have an idiopathic neuropathy. I am Not diabetic. Though everyone assumes I am. My neuropathy is caused by my RA. It appeared with my first RA flare.
    Hope this helps. Unfortunately everyone is different. When it comes to treatments and drugs. What helps one my not help another. But I believe in sharing information. You never know what is going to help. Good luck.

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  • By Erin Rush Moderator

    Thank you so much for sharing, GingerS! I think it is always helpful to read about other members’ experiences with symptoms and treatments. Thank you again for taking the time to share. Best, Erin, RheumatoidArthritis.net Team Member.

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