By Davida Jones
I was ms-diagnosed for so many years that when I finally did get the right diagnosis, it was bad. I was told that I have the more aggressive form of RA, and on top of that, I have Fibromyalgia, Psoriasis and Hypothyroidism. I have tried so many different combinations of drugs, including biologic’s. I have been on long term steroid therapy and I stay in constant pain. I do go to a pain management clinic, but the medication is also trial and error. I currently take two different medications for the pain. It does help some, but not enough for me to lead a normal life. I have been dealing with now for 18 months, and all I seem to do is get worse. I have been in and out of the hospital 14 times in 2014. This Ra has also effected my lungs, kidneys, liver and my spleen. I have been in respiratory failure 3 times, and kidney failure 7 times. My pancreas is also effected. I feel that this is what the rest of life is going to be like and I am only 48 years old. I have raised my children and they now have their own homes and lives to lead. I do not like depending on anyone for anything. But sometimes I feel I have no choice. I live alone, but find that things that I did everyday, I can no longer do. Simple tasks like washing my dishes or making a meal is a chore for me. I have the best doctors treating me, but it is a process, it just seems like it is taking so long and my quality of life is nearly non existent. I am discouraged, but I have to have Hope. I have to learn my limitations and find a better way of dealing with this disease. I do not get enough sleep or rest. My memory seems to bad these days. I have no balance. I am just frustrated and appreciate the fact that I can vent a little. Thank you for listening to me. I will Pray for all of you out there that is going through the same thing. God Bless you all.