Must vent some. I know we all have problems we are dealing with, and as much as I would like to be on here to offer support and share, I just have felt so badly lately. I’ve had RA since 1998, which seems like forever. In the past 4 years, I’ve had low grade fevers, usually between 98.9 to 100.9. The doctors I’ve seen aren’t so worried, and I’ve had a number of tests even with an infectious disease doctor. All is well with a negative test, we all know that. (sarcasm intended) My fevers have always been from November to March, until this year. Even though I know they aren’t dangerously high, these temps make me feel lousy, like the flu or something.
Two years ago I started having a cough, a dry cough that just lingered. After different suggestions that didn’t work, I was sent to a pulmonologist. He diagnosed me with mild COPD (non-smokers). I started on Symbicort inhaler with a rescue inhaler with albuterol. That helped until about 2 months ago. I ended up with the dry cough again and nothing would help. Even though my fever was gone, it came back, still low grade. With my immune system getting so low, I think I might be someone who would be considered differently at my family doctor’s, but the fact my regular doctor was overbooked, or at the hospital making rounds, I ended up seeing doctors unfamiliar with my situation. Sure, they skim over the highlights of your chart, but they don’t KNOW you. I ended up staying sick for 3 to 4 weeks seeing different doctors until finally I was diagnosed with pneumonia. After being on Leviquin for 2 rounds, prescription cough syrup, and prednisone, I was finally referred back to the pulmonologist. Now I’m on 3 inhalers, prednisone again, and still running the fever that is not alarming. Just a bit ago I checked it and it is 99.8. I feel like my body is made of lead and I move in slow motion. My fatigue is passed helping I believe, and my husband is giving me “looks” like maybe I’m faking it. (That part it probably due to my frustration and is not real.) I’ve missed all of my grandkids’ ballgames, and a dinner at church tonight. I just can’t get well, and the other side of the coin is I won’t be able to take my Orencia which will set me up for more pain.
So sorry, I’m not really asking for answers, just don’t know what to do except lie around, and try to take care of me. Sometimes I wish I could curl in a ball and just sleep away. Bad thing there is I can’t sleep well, only short bits of time.
Just needed to vent. I truly hope all are at a good place with their RA. I really know this will pass.