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Remicade-when does it work ?

  • By kelly

    I was diagnosed with RA about 8 years ago,and like everyone else have tried numerous things and am now on remicade. First dose worked good for about 3 days then I’m back to feeling achy, fatigued and sore again. I am taking methotrexate as well. I am on 3 mgs/kg to start. When will I notice a significant difference

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  • By Sara

    Hi Kelly,

    I noticed a difference with Remicade within a week of taking it. It’s since stopped working, but during the time that it did, it was such a relief. Good luck!

    Sara

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  • By Kelly Mack Moderator

    When I started methotrexate, it took about a month for me to feel improvement in my RA symptoms. Hope the treatments work soon! -Kelly (Site Moderator)

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  • By Julie

    Hi all, I’m a 41 year old woman with RA. I have been on remicade for 2 years now. I had a pulmonary embolism in the fall that they classified as “provoked” meaning they knew it was caused by the birth control pill I was on. Now, 6 months later they classify it as ” unprovoked” because I still have lots of chest pain and it is very uncomfortable to yawn or sneeze. Has anyone else had a pulmonary embolism and been told it could have been caused by the arthritis meds? They now tell me I have lung disease and the arthritis is going after my lungs. Feeling very overwhelmed and concerned. Anyone else have this experience that they don’t mind sharing?
    Julie

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    • By Lai C.

      Hi Julie, My husband has been on Remicade since 2009. He was diagnosed a month ago with two large “unprovoked” PE’s. He does not have RA but has Sarcoidosis of the lung, Crohn’s Disease, and Ulcerative Colitis. We have not been told that it is because of the Remicade (they have no idea what caused them) but after doing some research and “gut instinct” that is what we believe is the cause. I know it’s been a while since you posted this. I hope you have the answers you were looking for by now, but I figured I would reply just in case to let you know that you are not alone.

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  • By Julie

    Hi, Julie again. Sorry, I should mention I take remicade. I forgot to mention this above. Wondering if anyone had a similar experience on remicade and complications of a pulmonary embolism
    Thanks!

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  • By Andrew Lumpe, PhD Moderator

    Julie, so sorry for you experiences! A pulmonary embolism can be a hard thing. I haven’t had any experience with that while on a biologic but perhaps others have. You might want to post your question on our Facebook page general discussion to find some answers.

    https://www.facebook.com/RheumatoidArthritisDotNet

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