Talked with my dr. today. She said that my dramatic response to prednisone shows a lot of inflammation is going on. Although, the only actual erosions I have are in my feet. Hips and big toes mostly show OA type damage. So she said I could go on a low dose of pred. -5 mg a day- to help with the joint pain.
And she also wants me to start the Lyrica. I assume this is to rule out Fibromyalgia, since this is a nerve pain med used to treat fibro?
I declined the low dose pred. at the moment, much as I would love to feel some relief. One, because I want to see my response to the Lyrica without anything else. Two……honestly when I tapered down the pred. in the first place, by the time I got to 10 mg, all my joint pain was back. Not sure what good 5 mg. will do me. Three, I have osteopenia….not thrilled about a steroid longer term.
So the journey of trying to figure this out continues. If the Lyrica does not help, not sure where we are. I have some bone erosion in my feet, but also OA other places. And I obviously have a lot of inflammation going on. But all bloodwork is normal. So the puzzle continues to be a puzzle.
Anyone else been in this boat?