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Advice dealing with a knee flare from rhematoid arthritis

Hi all

I was diagnosed with JIA at 18months old, which transitioned into rheumatoid arthritis I'm now 36 and really struggling with a right knee flare, in alot of discomfort, limited movement in that knee. I have a guided ultrasound cortisone injection boomed for 29th May which I've been waiting months for.

My emotions are all over the place due to pain and discomfort and difficulty walking due to the flare.

Currently taking salfasalazine due to trying to conceive.

Tried hot and cold compress nothing seems to be elevating the pain/swelling.

Aanyone been in a similar situations be great if you could reach out, any advice ?

  1. Hi . There definitely are plenty of people here who have had similar situations and the cortisone injections. First, I want to share with you this article from our editorial team on knee pain and inflammation, which shares some treatment options: https://rheumatoidarthritis.net/symptoms/knee-inflammation-swelling-and-stiffness.
    I also want to note that you are not alone here in being diagnosed as a juvenile. My wife, Kelly Mack, was diagnosed at two, as was another contributor Kat. Another, Daniel, was diagnose at around nine. I can tell you that Kelly had some success with cortisone shots as a child, before her knee replacements (she had extensive juvenile damage and had both hips and knees replaced at 15 and 16 respectively, but she was diagnosed before modern treatments).
    Has your doctor said anything about the overall condition of your knee? If the joint is still solid, many have reported getting quite a bit of relief from the cortisone injections. Your doctor should be able to explain why they think a cortisone injection is the best option at this time. Hopefully others will chime in with their thoughts and experiences. Wishing you the best. Richard (RheumatoidArthritis.net Team)

    1. As said, I was diagnosed many many moons ago, when free America Online discs littered the streets and computer monitors were as big as a house. Decades, and I can tell you that I have been where you are. The emotional and mental component of living with a chronic illness like RA can be an entire separate battle in its own right. It took me many years to find ways to overcome "the blahs" as I call them, and I still get them for a few days here and there every month or two. It's totally normal! We have an illness that basically traps us inside our on bodies and there is literally no escape. It is, of course, going to make you feel all types of ways about everything and if you add in the fact that you are trying to start a family, well, the emotional and mental stakes are ratcheted up to 11! The main thing that got me through a lot of tough times is telling myself that even though it feels like it will never end when you are in the worst of it, it always ends. Something ALWAYS comes along and changes things. Sure, it might not necessarily be night and day better but it will be different and, sometimes, that's enough to get through to the next change when it might actually get better. I know it's difficult to believe that when you are feeling like garbage day in and day out and you are sick and tired of being sick and tired but just know that it will end. That old saying, "this too shall pass," has persisted for generations for a reason! 😊 All of that plus you are not alone! People like me and Richard and everyone else is here to help however we can! Let us know! Keep on keepin' on, DPM

      1. thank you Richard for your reply, yes defo an emotional roller coaster and im sick of feeling sorry for myself and your right this is short term pain and discomfort and it will pass which is what I hold on to, especially with the steriod injection coming up, this is keeping me going haha. Really feel supported by all that have replied so thank you, so nice to know your not alone

      2. Anytime and wishing you a lower pain day!! Keep on keepin' on, DPM

    2. Hi , I don't have anything more to add than what Richard and Daniel already shared, but I just wanted to chime in and just second what they said. You are not alone! So many people understand and have been where you are, and we will be crossing our fingers (and toes) that this injection brings you the much needed relief that you deserve. Sending you all the good vibes and gentle hugs. -- Warmly, Christine (Team Member)

      1. thank you means alot, very much hoping the injection brings me relief

    3. , I have a replaced right knee with additional hardware added to the knee after a femur fracture. Much to my shock and horror, (said with a grin because sometimes I like to be dramatic) this knee will flare up and make walking extremely painful. Like tears in my eyes painful.
      When it flares up, I will use a cane to off load the knee and a Velcro knee brace for support. Perhaps these are strategies that you have tried.
      I hope you upcoming injection will get the knee calmed down. Hang in there, although I know that this is no fun at all and you're probably exhausted from the struggle.

      1. oh gosh im sorry to hear that sounds very painful indeed. I will defo get myself a velcro knee brace I think this will really help

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