Benefits of doing therapy with profesionals that understand autoinmune diseases and/or chronic pain
Hi! Just wanted to know if any of you have done or is doing therapy with a psychologist/psychiatrist that specializes in autoinmune diseases, chronic pain or “invisible” diseases? And if so if you have found it more beneficial than doing therapy with a normal professional? Also if you have the contact information? I am looking for one. Thank you!
By “therapy” i mean psychological therapy
that's a great question, and I'm so glad you reached out. While I can't answer it from personal experience, I hope some of our community members with experiences with therapists who specialize in autoimmune diseases/chronic pain/invisible disease can chime in and share their experiences with you.
I will say, several years ago when my child was diagnosed with an autoimmune condition (Celiac), we found a therapist who specialized in treating kids who have chronic illness and disease, so I know those types of therapists are out there. And I can definitely see how having someone who specializes in understanding what it means to live with chronic diseases would have an additional benefit to therapists who don't. Although, that doesn't mean that one couldn't benefit from a therapist who doesn't specialize.
In any case, I'm sorry I couldn't be more helpful, but hopefully some others can chime in here for you. And, if you're looking for someone in your area, your doctor might be someone you could ask for a recommendation for a therapist.
I hope that you can get some helpful feedback here! -- Warmly, Christine (Team Member)
Thank you christine!🙏❤️
Great question! I have worked with a counselor over the years. I found what matters most is making a personal connection. I find it difficult to predict who I can make that connection with. I‘ve recently moved and am not sure how to find someone here. My doctor gave me a printed list - but that’s all it is. Do I just throw a dart and call whoever?
Before I moved, I saw a “Medical Counselor”. I found her through a friend who also has a chronic illness. She is a Social Worker who specializes in chronic illnesses and is affiliated with a Diabetes Center, but sees all types of patients.
I do find it helpful to work with someone familiar chronic illnesses and chronic pain. There are many benefits! I prefer to not having to explain my condition over and over. It helps to have someone accept where I am coming from and understand the grief of what I have left behind. Personally, I need someone who understands my physical limitations and yet will also gently challenge the way I think or react so I can move forward.
I found my counselor through my Employee Assistance Program (EAP). Some employers offer EAP as part of their benefit package. Mine covered 10 or so appointments for free. We could request more if needed, or get a referral to someone in the community. That, your doctor, or through a friend are the best ways I know to get a recommendation. It takes a spot of bravery to reach out and get started. You’ve inspired me to try again! Jo
