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First Forum - A couple of questions

Hi Everyone, I never considered a forum until a friend recommended and after browsing, grateful to know there are others to talk with and share questions after several years of dealing with pain, getting the diagnosis and having treatment.

I found out that I had RA in 2020 - after the Plaquenil stopped working, and hearing terrible things about Methotrexate, I did some research and came across Sulphasalazine - My doctor said we could try it and I've been using it successfully combined with the Plaquenil with great success since. I had occasional pain and a couple steroid shots but nothing unmanageable.

For the last month and a half, my hands started aching and / knuckles swelling and I am aware of my wrist. Knees ache as do feet constantly. I was given and am finishing the Prednesone regimen and feel a bit better.

My question is, does this sound a flare? I've never really had one since being on medicine and don't know if this means meds are not working and I have to move on to the next level or if it could go away. How long do flares typically last and do they cause this much trouble?

My other question is very odd but have had this experience twice and wanted to know if anyone else has experienced it...

I have occasional migraines, some that result in serious vomiting. The crazy thing is, after significant vomiting, where I empty all contents of your stomach, my joints stop hurting for a day or two. Has anyone else had this experience? The optimist in me wants to believe that if this happens to others, that perhaps there is a correlation between gut and RA and perhaps research could help lead to a cure?! Let me know and thanks for any input anybody is willing to share. V

  1. I'm so glad you joined us and took the time to introduce yourself, ! As I always tell our new members, "I wish you had no need of a community like this one, but I am glad you found us!".


    I am glad you have found a medication combo that works well for you overall. And I hope your pain doesn't return as the Prednisone effects wear off.


    As far as pinpointing a flare, well, that can be a bit tricky. There are markers a rheumatologist will look for to officially diagnose a flare, but sometimes a person can be in a flare without the expected evidence and, I really tend to think people know their own bodies very well. I think you'll be able to start to peg a flare when you experience one. That said, since your episode wasn't too drastic, you may not want to call it a full fleged flare. For more insight on the topic of flares, you can look here (but please not, we have lots of information on this topic, as it's a popular one here) -- https://rheumatoidarthritis.net/what-is-ra/ra-flare .


    Also, headaches (and migraines) are not unusual with RA. Though, I have never read of the phenomenon of feeling pain free after vomiting due to a migraine. That's downright interesting and has me stumped. I don't know if RA and migraines are related or if they just kind of travel together, if that makes sense. As in, you may have started experiencing migraines whether you were diagnosed with RA and vice versa. Here's one contributor's take on his experience with sever headaches and his RA (and there are quite a few community member comments at the end of the piece) -- https://rheumatoidarthritis.net/living/pounding-headache. Again, I'm glad you're here and please don't hesitate to reach out if you have any questions or concerns. We're happy to help in any way we can!


    I look forward to seeing you around the community!


    Best, Erin, RheumatoidArthritis.net Team Member.

    1. Thank you so much Erin - I appreciate you sharing those articles and will get busy reading.

      1. Vonnie M, I have had migraines for years, even prior to RA symptoms. In the past, I noticed a rhythm to them. I would have a day or two of mild general fatigue or malaise, that I didn't necessarily identify with migraine. I then get a full on migraine; mine rarely include vomiting, just faint nausea. Once I was prescribed a triptan and could fully treat the migraine, I would have a full body feeling of relief as the headache resolved. Even a little bit of a "high". Also, once I could fully treat a migraine, their frequency decreased significantly! I think there may have been a low grade migraine process I wasn't registering. It's easy to believe migraines are linked to other disease symptoms throughout the body, such as RA.


        Regarding a flare - your symptoms could be a flare. Keep an eye on it and follow up with your Rheum as needed. Flares can be treated short term, as yours was with Prednisone, and resolve. Or they may become a trend and may mean it is time to tweak you treatment plan. For me, when I realize a steroid burst isn't enough to keep me under control, it is time to take another look. My doctor's physical exam, especially of my hands, helps give us objective data. Remember, a significant goal of treatment is preventing long term damage from inflammation.
        Hoping for less flairs and headaches, Jo

        1. Hi Jo. Thank you so much for the feedback. Like you, I have had migraines intermittently since childhood so I never considered they could be related. Mine is less a high after but truly no joint pain, (a constant lately) for two days after vomiting. My brother takes sumatriptan and it helps him too. I will be seeing doctor in about a month and will review all of this with him. I have also started red light therapy, infrared sauna and cryotherapy. Slightly helpful, after three visits - will share that journey as well. I am so appreciative for the advise, insight and support and hope that I can offer the same to all who are dealing with this.

          1. Hi . On top of the excellent information already provided, I just want to note that we have a sister-site for Migraine at https://migraine.com/. There you can find the same level of information and support for that condition as you find here for RA. Wishing you the best. Richard (RheumatoidArthritis.net Team)

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