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I see several drs the longer I have RA the more drs I need

I don’t believe not one of my drs really understands what I’m going through. Pain medication could be addictive but no one talks about the risk that biological have on the body. Cancer tumors nodules on the heart and lungs I could go on and on. I would take my chances with pain meds if my dr in NJ didn’t vanish the day marijauna became legal. I don’t have any friends they got tired of me canceling I feel like the only time I talk about it I m complaining thanks for listening

  1. I get it. RA is so complicated. It has been mentioned many times before just how much doctors seem to not understand how this terrible disease affects those who have it (let alone know how to diagnosis it), and family and friends can seem completely lost unless there are physical symptoms present which we know isn't always the case with this condition. Your health matters and it's important that you have a healthcare team that truly supports you. Your feelings and experiences are valid and we're always here to let you voice how all of this is impacting you. There are so many who feel the same way so know that you are not alone in this. Hoping things turn around soon, Latoya (Team Member)

    1. Hi . Know that people here understand the plethora of doctors and the feeling that none of them can understand the whole picture of what RA brings. My wife, Kelly Mack (a contributor here), was diagnosed at age two, 45 years ago and definitely has had her share of doctors. She wrote here about the need for specialists: https://rheumatoidarthritis.net/living/specialist-treatment. In her case (and noted in the article), many of them are because of the comorbidities that come with RA.
      I also want to tag our patient leader because I know he has dealt with some of the potential conditions you have mentioned, including cancer and has experience with pain management.
      Others here also understand the trouble with people not understand just how unpredictable or just downright terrible RA can be. Daniel actually wrote this article on dealing with the unpredictability: https://rheumatoidarthritis.net/living/coping-unpredictable-symptoms and this one on cancelling out on plans, in which he discusses the need to be easy on yourself at times: https://rheumatoidarthritis.net/living/cancelling-plans. We know this is easier said than done, but please know that this community is here for you. Best, Richard (RheumatoidArthritis.net Team)

      1. Oh I have been where you are so many times, I totally get it. Thanks for tagging me. First, let me say that finding a pain doctor in this day and age is difficult and finding one that doesn't treat you like a little child that needs to be monitored at all times and scolded and threatened if you push back at all is nearly impossible. Mine is an anesthesiologist at a well-known hospital in Manhattan so he has the protections of a big hospital system. It allows him to prescribe the amounts I need and not get looked at like a drug dealer, although it still does happen. I've been with him for decades and there have been periods, sometimes months at at time, when we had to make alternative arrangements due to some person who isn't a doctor thinking they know better than my doctors do. As for cancelling on friends that's 100% a thing. I have been lucky enough to have some of the most understanding friends in the world and still, if I cancel enough times in a row I definitely won't get invites for a while until I reach out again and restart it. It's just human nature I'm afraid and just one of things that makes extra work for those of us who suffer with RA. I know it's not fair, but just know you are not alone in any of this. If there's anything we can do to help just ask and we will always be around to chat, or listen, or just be here if you want to vent and know you are not alone. Keep on keepin' on, DPM

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