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I’m new here.

Just finding my way around on here.
I was diagnosed with RA 4 months ago at age 85. Had never had it nor had any family member. I’m in severe pain constantly. Currently taking hydroxychloroquine and Hydrocodone prescribed by my rheumatologist. Along with the pain I have intense fatigue. I was very active for my age, now feel totally handicapped. I’ve just finished my 3rd prednisone taper.
A couple of friends have RA but nothing like the severe pain and fatigue I’m dealing with. I’m wondering if I’ve been misdiagnosed.

  1. Welcome to this amazing forum! So sorry that you are suffering so bad at this time, but there is a light at the end of your tunnel, it just takes time unfortunately. The medication you stated you are currently on is common for the "beginner". The old tried and true, plus insurance companies can have a little say in that also. What you are feeling is common when in an RA Flare, oh the fatigue sometimes I feel it is the worst and then for your pain medication, that too can cause fatigue. May I suggest contacting your Rheumatologist and let them know that you have found no relief and see what they have to say, they may or may not want to try a different medication with you or adjust dosage.


    Up at the top left corner of this page you will see the MENU, click on that then look for the option "SIGNS & SYMPTOMS" then each of those goes to areas of reading. May I suggest as you are able is to go through and read as many of those titles under the MENU option, they are so full of information and this will also help you figure out the site a little easier.


    Keep in mind please at anytime if you feel you are misdiagnosed, you can always request a 2nd opinion. Just ask your Primary for another referral to a different Rheumatologist. Asking questions for what and why are fabulous, that is how we educate ourselves and keep those doctors on their toes!


    You mentioned that you have a couple friends with RA, have you asked them about what treatment they are on or how they might find some relief? Takes notes for now and the future. Please keep in mind, many people suffer from different forms of Arthritis and don't realize which form they have and believe all arthritis's are the same, they are not, but have similarities of course.


    I wish I could help you further at this time, but you have a lot of reading to do over there on the left. Sending you the biggest warmest Teddy Bear hug possible.








    1. Hi . First, let me echo the thoughts of . Second, mind if I ask how long you have been on the hydroxychloroquine? I ask because, as this article from the American College of Rheumatology notes, it can take a month or two for symptoms to start to improve and up to six months to feel the full benefit: https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Treatments/Hydroxychloroquine-Plaquenil#:~:text=Symptoms%20can%20start%20to%20improve,of%20this%20medication%20are%20experienced. That said, don't hesitate to ask if your treatment should be adjusted or changed. Please know that people here understand and that this community is here for you. Wishing you the best. Richard (RheumatoidArthritis.net Team)

      1. Oh those stiff neck and shoulders, wish they could be cut from the body and replaced right, hey take those hands with them too! Have you tried ice or heat? Each of us react differently, my body prefers heat. What I do to achieve heat for my hands and it tingles happy through the rest of my body, is I run warm water over my inside wrist and then over my hands, first allowing them to warm, then just open to full extent and gently close them (not a hard grip) a few times. At times I skip using my dish washer and actually wash dishes the "old fashion" way, thus giving my hands the warmth they need, yet exercising them too!





      2. Hi . Neck pain just feels so inescapable. Have you tried wearing a neck brace during the day? It might relieve the pressure on some of the tendons and ligaments. You can get one online for about $25. If the you are seeing absolutely no impact yet from the hydroxychloroquine, I would contact your doctor and ask whether it might be time to try something new. You might also want to request a referral to physical therapy. Pain can cause you to use your muscles differently, which can lead to more pain, Physical therapy might loosen things up and bring you a bit of relief. I hope you feel better soon. Gentle hugs. - Lori (Team Member)

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