How many times did you change your Rheumatologist?
I'm about 6 months into RA and finally saw my first Rheumatologist in July, after waiting 2 months. I wasn't entirely comfortable with the first visit - very quick; does this or that hurt, bing bam boom - done - see you in 6 weeks and out the door. Yesterday was my 2nd visit and still not impressed, so much so that I'm going to try and get in with another Dr.
Yesterday's appt was asking how I have been feeling, how well did the MethylPrednisolone work since the Prednisone did little, how's sleep, etc. She went through the joints in my hands and wrists asking about soreness, asking about knees, ankles, feet & toes. Some were sore some weren't, but that seems to change randomly - as it did last night. I mentioned my right hip has been really sore, and my left, but not as much and she said that's not RA, it's osteoarthritis. I told her that I've dropped two cups of coffee from my right hand in the past wekk - one in my car! I didn't think about picking up the cups and making sure I had good grips because I've been doing that for years, but now - I have to focus so I'm sure I won't drop them.
So a few things:
1. My hips have never been sore prior to my diagnosis earlier this year, and it's progressively getting more painful. Is she correct? Can you not have RA in your hips? Is it possible to draw that conclusion w/o any examination or x-ray, etc?
2. Joint swelling. She told me that my inflammation marker was normal so no swelling of the joints. I disagree - my hands feel tight most of the time, my rings (biker - so some skull rings 😉 ) are harder to get on or off & my PT says, YES, your hands and fingers are swollen.
3. Dropping the cups of coffee. This is kind of a thing, well to me. She told me that it could be carpal tunnel.
Lastly - She told me that my RA isn't serious. [confused] Guess by not having disfigured joints, etc? So yes, I'm early into RA, but it's not bad RA? But, dammit it hurts every day, some better then others. Am I making a bigger about this then I should? Should I ignore the pain and stop being a whimp? What about the fatigue?
She prescribed me Plaquenil to take for a couple of months with MethylPrednisolone to see if that helps. The MethylPrednisone has some bad side effects for me and the Plaquenil, ugh - have to get an eye exam for a baseline so if my vision becomes blurry there's something to compare it to. [eyeroll]
So there's my venting and whatever else it could be. 😁
Anyone else have Dr. experiences that weren't quite helpful or reassuring?