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Pain feels worse but labs are better? How to find answers for “inexplicable” pain

Hi, i have been diagnosed for 2 years now. At first they told me I had fibro, then a rheumatoid doctor said it was RA only. I had periods of full body inflammation, now i am generally better, labs are better, but I have pain that is inexplicable for example shooting pains up and down my right leg, starting from the lower back and through the hip. He says inflamation is way lower. It hurts much more than before. Anyone is going or has gone through this? 🙏

  1. Forgot to add I started methotrexate 1 month ago

    1. After forty years of "RA" myself, I can say that nothing is out of bounds in my experience. I use the quotes when I say RA because I never really conformed to most of the typical stuff and I'm seronegative - i.e. my RA doesn't show up on blood test so they always thought maybe I had something similar, some orphan disease, but either way, the pain and fatigue is real and it can be debilitating. The ups and downs of RA is a thing we all go through, so it sounds like you might be experiencing just that - the classic random pains and ups and downs of RA. Time will tell, unfortunately but just know you are not alone. If there's anything we can do to help please let us know. Keep on keepin' on, DPM

      1. Thank you Daniel for your response. Definetly feel much less alone now that i have found this awsome community! I am also seronegative 😁

        1. thank you so much for reaching out. Sometimes it is hard to know what is causing what, with Rheumatoid Arthritis. In May I will be going on living with RA for 20 years. I was diagnosed with RA in my twenties.
          If the pain you are describing in your right leg has worsened and your inflammation has gone down, you might want to reach out to your primary doctor, for further work up on your symptoms. I have attached an article that might be helpful to you. https://creakyjoints.org/living-with-arthritis/treatment-and-care/arthritis-vs-sciatica/. Thank you for being part of our community. Just Keep Swimming...Lynn marie, "RheumatoidArthritis.net Team Member"

      2. Hi . Just to follow up on some of the excellent information already shared. RA can impact the nerves. This article from our editorial team discusses this issue: https://rheumatoidarthritis.net/symptoms/nerve-symptoms. Of course, only a doctor can do the proper diagnostics and there are certainly other potential causes, but I want to make sure you have the information. Hope this is helpful and please feel free, if you like, to keep us posted and to ask additional questions. Best, Richard (RheumatoidArthritis.net Team)

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