Peripheral Spondyloarthropathy
I wanted to see if anyone has any experience of Peripheral Spondyloarthropathy/Seronegative Spondyloarthritis with peripheral manifestations. I just went to see a new rheumatologist and this is what she thinks I have. For 20 yrs they have been calling it polyinflammatory arthritis and have been controlled on Sulphasalazime. Over last few yrs since I have hand and hip joint degeneration and regularly feel ill fatigued and i pain they have tried- several Biologics- Inflectra, Humira, Orencia and took Advil which really worked for the pain and They all kept the markers down but in the MRI my joints have really deteriorated and was still in a lot of pain- I just started Cosentryx for the above new diagnosis - am able to come off even the Advil, only been a week, but am worried as it’s a newer Biologics,I do have some anxiety, sensitive stomach ( wondering if that the newly started fosamax)but pain and energy levels definately better, does anyone have any experience with it and advice?
Hi
. I can see how it might be confusing and overwhelming to get this new diagnosis after 20 years. I hope the diagnosis is accurate and that it helps your doctor better target your treatment. How awesome that Cosentyx is helping. I have no experience with Cosentyx, but Cosentyx has been around for eight years now and I have not seen much negative feedback about it. I hope you get some information from the community. While we do not have communities specifically for your new diagnosis, we do have sister communities where you might find others with peripheral Spondyloarthropathy/Seronegative Spondyloarthritis: AnkylosingSpondylitis.net and AxialSpondyloarthritis.net. You are always welcome here, but you might find even better support and resources in those two communities. Thinking of you and wishing you the best. - Lori (Team Member)
