RA or Parvo B19?

Hi Everyone,
I was diagnosed with RA in 2012 and have been on 20mg of methotrexate (and at times a combo of other meds) since. I spent years with one rheumatologist, then switched insurance, and had to find a new person at Kaiser. I went through a couple rheumatologists who were pretty awful and one told me I had polyarthritis and fibromyalgia because my labs were excellent. I ultimately found a decent rheumatologist who at least believed my initial diagnosis. Now she is retiring and I had to get a new rheumatologist.

My new rheumatologist is skeptical that I have RA and even suggested to taper or go off of methotrexate. Why? After a decade of lab results of RA factor, ESR, and C-Reactive protein my labs show no indication of RA. Additionally I have no visible joint deformities/erosion. However, I do experience symptoms.

I feel so confused because it feels as though one camp of doctors say, my labs are good because it shows that methotrexate is doing its job. Methotrexate is suppose to put patients in remission and prevent joint damage.

Now my new rheumatologist suggests that maybe my initial onset was not RA and maybe it was virus called Parvo B19? Apparently, having good labs is not normal even on treatment. Also since I have no physical signs of RA, that’s apparently not normal?

I would love nothing more than to stop methotrexate so the idea of stopping it made me instantly cry tears of joy. I felt so relieved! But… is this real?

Then I went and looked at my labs from 2012/2013 and recalled I was diagnosed through anti-ccp labs. My anti-ccp labs were extraordinarily high. My rheumatologist at that time said that indicated a more severe form of the disease. My RA factor, c-reactive, and ESR have never been really high. At the most they were just slightly elevated.

In the last 10 years I have not had a single anti-ccp test. Is that important?

Have any of ya’ll been through this?

My head is spinning.

Thank you very much for taking the time to read this and I hope it makes sense.