Research Trial, Reset-RA
Has anyone else looked into this trial? I have done tons of research on it and on vagus nerve stimulation and feel this is an exiting new treatment. I would love to hear if any one else has done any research on it. BTW, I have applied for the trial. Waiting...
A little history on my disease-
I am 47 years old and was diagnosed with seropositive RA almost 5 years ago. My symptoms were not horrible at that time. Chronic fatigue and a few bad joints. My rheumatologist put me on 20 mg methotrexate. Each year my symptoms increased and I was only feeling worse. After about two years of him not listening to me, when I thought I couldn't function anymore, I switched rheumatologists. He added Plaquenil, prednisone and Enbrel. While on the high dose of prednisone, I felt so much better. But I couldn't take that forever. Once I was weened off, I was miserble again. I had a subluxation of my CMC joint on my left thumb and it slid down about 2 cm. I had arthroscopy surgery to repair it, then my tendon ruptured. Back to a useless thumb. My fear of what my life would be like in the future drove me to look for alternative treatments. If I had already lost one joint at 47, what will my life look like in 5, 10 or 20 years? The medicines are reeking havoc on my body along with the disease.
, hi! I think I found the study you are referencing. I am a little leery, as I am not finding any links to medical journals or accredited medical institutions. That tends to be a bit of a red flag for me. However, I didn't dive super deep into researching the study, so I may have missed it.
Have you discussed this study with your physician? Even if he disagrees with your thoughts on the study, his input may be helpful. And, in the end, it is your decision what you do with your body! Some things I do like about the study (if I am looking at the correct study) -- they FAQ covers helpful info. Participants are able to leave the study at any time.
It does sound like the medications you have tried are not the best fit for you and that stinks. I am sorry. If you do qualify and participate in the study, I would love to hear your thoughts on it (if and when you are allowed to share). I am always glad when people share new and exciting treatment options. And each innovation and successful treatment brings us closer to a cure or at least more successful treatment options.
Good luck and keep us posted!
Best, Erin, RheumatoidArthritis.net Team Member.
I found some literature. Very little impresses me. This does.
Check out the links below....but if you do nothing else, watch the video here:
https://setpointmedical.com/science/inflammatory-reflex/
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(20)30425-2/fulltext
The company manufacturing the device is SetPoint Medical:
https://setpointmedical.com/vagus-nerve-stimulation-wanders-into-mainstream-rheumatology/
The following link is worth taking the time to read:
https://setpointmedical.com/science/inflammatory-reflex/For those who think they may want to participate in a clinical trial:
https://reset-ra.study/Thanks so much for bringing this up. I'd heard some things re bioelectronic treatment in the past couple years, but hadn't had the time to do any research. Today I took a few minutes and was wow'ed by what's happening. To that end, I've posted some links for everyone. To those reading, if you do nothing else, watch the video in the link I posted further down in this thread.
