The Three Parts of Chronic Illness FatigueFatigue. We've all experienced it; in fact, it's one of the hardest parts to deal with when you are living with RA and chronic illness. Why is it such a...Reactions0reactionsComments0 comments
Body Exhaustion: A Pain in the Tail!I had a recent painful experience that I'm sure other individuals have also experienced--I'd like to corroborate this experience with my own experience. In august, graduate classes for my degree...Reactions0reactionsComments26 comments
Meeting My New RheumatologistIn 2021, my rheumatologist, Dr. N, told me he was about to retire. Oh, I knew it was coming, but it was a difficult message to hear. Dr. N and...Reactions0reactionsComments13 comments
When Do You Throw in the Treatment Towel?At the start of my RA journey, I was unaware of how many different types of treatments were available to treat the pain, inflammation, and overactivity of the immune system...Reactions0reactionsComments23 comments
Questions That Linger after Half a Century of Juvenile Rheumatoid Arthritis: When to Seek HelpI've now lived with the juvenile form of rheumatoid arthritis for over 50 years. I wish all that time meant that I had everything figured out, but unfortunately, just like...Reactions0reactionsComments6 comments
How to Build Your Own RampI’ve always been a fan of ramps. When I was younger and could walk more, I liked them for being easier for me than stairs because I could walk them...Reactions0reactionsComments5 comments
Conversation of the WeekWe're continuing an initiative designed to connect you with our RA health leaders! Resuming in June 2023, each week a different RA Health Leader will lead a discussion in the...Reactions0reactionsComments5 comments
Accessible RA ClothesOne aspect you might not hear discussed a lot when you have RA is how inaccessible clothes can be, especially when you experience joint damage from RA. You don't realize...Reactions0reactionsComments4 comments
The Mask We Wear with RAI was looking through some old photos the other day of me from childhood. I was posed very proudly in an all-plastic, full-body Halloween costume. The costume came with a...Reactions0reactionsComments40 comments
Voting with Rheumatoid ArthritisVoting is a fundamental American right, but it has special meaning for people with disabilities or health conditions. Until federal laws like the Americans with Disabilities Act (ADA) were enacted...Reactions0reactionsComments0 comments
Music Makes the Medicine Go DownWhen I was a kid growing up with juvenile rheumatoid arthritis (now called juvenile idiopathic arthritis), I spent a lot of time in the car being driven to medical appointments...Reactions0reactionsComments2 comments
Medical GaslightingI just read an interesting and very relatable article in the New York Times. In the article, experts share tips on how to advocate for yourself in a healthcare setting...Reactions0reactionsComments73 comments
Accessible Alternative Short-term Pain Management OptionsYou need many options when you are battling varying degrees and types of pain on a daily basis. Whether it is stabbing, throbbing, on fire, or frozen, pain always comes...Reactions0reactionsComments3 comments
Accessible Alternative Long-term Pain Management OptionsThese alternative pain management options (often) take a longer time to see any noticeable changes in overall pain and fatigue levels. These aren’t my “go-to” options for immediate pain relief...Reactions0reactionsComments3 comments
4 Things You Don't Need to Apologize for With RABeing a newer member of the RA community (I just recently passed my 2-year diagnosis-versary), I have learned a lot about what it means to live with RA and the...Reactions0reactionsComments22 comments
What I Thought Was Eczema Turned Out to Be ShinglesEditor’s Note: This article was written by Patient Leader Cora Lyn Sears and originally appeared on our partner site AtopicDermatitis.net. She describes her experience of having shingles while living with...Reactions0reactionsComments0 comments
I Love and Hate My LifeRheumatoid arthritis has caused a real dichotomy in my life. It caused so much turmoil but also some wonderful things. More often than not, I want to curl up in...Reactions0reactionsComments17 comments
Emotionally Preparing for SurgerySurgery – a necessary part of living with RA, unfortunately, and a major event in a patient’s life. Since this is part 2 of a 2-part series on preparing for...Reactions0reactionsComments5 comments
Preparing For Surgery - A GuideSurgery. For many of us with rheumatoid arthritis and other chronic illnesses, surgery is as much a part of life as fatigue or blood tests or having to make a...Reactions0reactionsComments2 comments
Oppression Days/DazeI’m coming to grips that some days are just not good ones. It’s not just the pain, fatigue, or joint limitations from rheumatoid arthritis, it’s the days when the fight...Reactions0reactionsComments14 comments