Is It Me or My RA?Lately, I’ve been having some cranky days. I really do take seriously my emotional state and how it influences my rheumatoid arthritis. Perhaps it is silly, but I feel staying...Reactions0reactionsComments12 comments
No. 2 – Do Research, Don't PanicThis is the second of ten things I’d like to go back and tell my newly diagnosed self about living with RA. Mae West has been credited with saying, “Too...Reactions0reactionsComments2 comments
Why Didn’t Anyone Tell Me That?On a recent visit to my rheumatologist, we were sitting with a medical student when my doctor asked me to explain how I was two years old when diagnosed. “See...Reactions0reactionsComments18 comments
Owning "My" RAHave you ever noticed that you refer to your own Rheumatoid Arthritis disease as “my RA”? It did not start out that way, but I think this sheds some interesting...Reactions0reactionsComments3 comments
A Crash Course in CaregivingLiving with a chronic illness often dramatically changes the way you manage routine activities and responsibilities. You might need assistance to keep up with home chores or may need accommodations...Reactions0reactionsComments0 comments
Where Would I Be Without Self-Advocacy?I’m riding a crowded train home from work and a woman behind me sets her bag on my head. I’m sitting in my wheelchair, so I guess it makes sense...Reactions0reactionsComments5 comments
Coping With ItI turned off the dryer and reached in, burying my hands in the deep-heated load of towels that had just finished the dry cycle. Oh, that felt so good! For...Reactions0reactionsComments4 comments
The Importance of Oral HealthDid you know that oral health and rheumatoid arthritis have the common link of inflammation? Recent research has found that people with RA experience gum disease at a much higher...Reactions0reactionsComments7 comments
What it is That Grips Us (Part 3)The evaluation of the symptoms of a major depressive episode is especially difficult when they occur in an individual who has a general medical condition. — The Diagnostic and Statistical...Reactions0reactionsComments4 comments
So what?It seems each year, around my birthday, I tend to reflect on purpose; more so now as I approach my last 18 months of full time work. That said, I...Reactions0reactionsComments3 comments
When RA Severity Is Off the ChartsFirst, let me start by stating that every person with RA is unique and must grapple individually with pain, stiffness, joint problems and all the complexity of the disease. No...Reactions0reactionsComments0 comments
Lisa Learns to Ride, Part IIOur riding adventures began last spring when we wheeled Lisa’s new bicycle out of the local REI store and into our car. Before that moment, Lisa had tested several bikes...Reactions0reactionsComments1 comments
Press pauseOver the years, especially since the onset of Rheumatoid Arthritis, I have come to deeply appreciate slowing down over the course of each day and “pressing the pause button” whenever...Reactions0reactionsComments2 comments
What it is that Grips Us (Part 2)With my voice revealing the nervous tension seated somewhere in my rib cage, I stood in front of a classroom full of undergraduate students for the first time in the...Reactions0reactionsComments0 comments
What the ACA Has Meant to Me: Dependent Coverage and No Benefit CapsPart III of a three-part series. When I was diagnosed with Rheumatoid Arthritis (RA), I was taking what was supposed to be my final semester of college. As it turned...Reactions0reactionsComments2 comments
What it is that Grips Us: A Series on Depression and RAWhen melancholy sets in, a kind of invisible but thick and heavy fog invades the heart, envelops the body, constricting its very core. All we feel is this constriction, this...Reactions0reactionsComments3 comments
What to Do when You Feel GoodI know. That headline sounds nuts. Who needs to know what to do when she feels good? What can’t you do when you feel good? When you have rheumatoid disease...Reactions0reactionsComments18 comments
Accessible Taxis Enhance FreedomUntil the last year, wheelchair accessible cabs have been few and far between. In most places across the U.S., they are rare. But I have found them increasing in number...Reactions0reactionsComments0 comments
Early Morning Exercise for the Late NighterExercise, as tolerated, and sufficient sleep and rest, are integral parts of rheumatoid arthritis management. Both in combination can elevate mood (depression affects people with RA at a rate far...Reactions0reactionsComments2 comments
Patient Assessment Used as a Clinical Objective (Really?!)I am R-factor negative and, not only that, all my labs associated with inflammation are always stone-cold normal. This is really frustrating when you go in to your rheumatologist’s office...Reactions0reactionsComments2 comments