How can I work with a new doctor?
Prior to my doctor’s retirement (short version anyway) I was receiving IVIG, and a pretty good pain management routine. Now his replacement states that I have Fibromyalgia, do not need any pain medications, and IVIG (every 4 weeks IV therapy infusion) is too expensive to receive when I don’t really need it. He stated he knows nothing about it and referred me to an Immunologist. Per the Immunologist instructions I’ve stopped IVIG in April and I’ve had major flare ups since and BAD fatigue. Well, I’m told by my new RA that the fatigue is Fibromyalgia. Let me be clear that my recent wrist/hand flare was EXACTLY how it all started up 10 years ago. BAD wrist pain, so much so, I thought I broke my wrist until after a few days it moved into my other wrist. Back 10 years ago I was referred to a hand specialist who ruled out everything from Carpal Tunnel to over-use. Finally, after much pain back and forth in my wrists, I was diagnosed with RA and began seeing a great Rheumatologist. He treated me and I was doing pretty darn good., not GREAT but holding my own without any MAJOR flares. My new RA says the past is the past. I was able to see him when my left wrist flared recently (which was very red, swollen, hot, sore). He sent me for bloodwork, and x-rays. Bloodwork looked good I’m told my RA factor was 124 out of a 1-12 range hmmm? To brief…. I had x-rays back in March and everything looked normal (I’m told) for a person with RA. These past x-rays from 5 days ago show Scapholunate Ligament disruption in both my wrists/hands the left being the worst. (based on “google” it is from a fall where you land or stop land with your hands or a sport injury) Anyway….I don’t understand how this could come on so suddenly, (no I didn’t fall or over-work myself) started in my right, lasted a few days then after 1 week went to my left wrist with force. Anyway, my NEW RA is now referring me to a hand surgeon. He states my RA is fully under control…. Guys…what do make of these? Anyone? I am taking Xeljanz and have been for the past 2 years. I feel like I am going crazy here. Help? Any advice?