I'm new here and I've felt a kinship from reading everyone's posts! I'm the only one in my family who has RA, and it seems the only one who knows about it also. Most of them (husband and kids excluded) look at me like I'm an alien when I attempt to explain it. One of my family members who I'm really close to has a child with an auto-immune disease also, and I am fully engaged in learning about it and talking about it. I really enjoy this little guy! My frustration is that whenever I mention what is going on with my RA I'm met with silence, averted eyes, or a quick subject change. It happens with others also. I feel very invalidated when this happens.
Does anyone have any suggestions or experience with this type of situation? I know it's a little childish, but I want them to pay attention to me!
I've had RA for a long time and was officially diagnosed in 2011. Since it is a huge part of me, I naturally want to share it with those I'm closest to. I need to find a way of communicating with this person that is effective.
How often you do experience an unexpected boost of energy?