Finding Balance At Work With RA

Hello, my name is Ruby. At 34-years old I was diagnosed with primary Sjögren’s syndrome, rheumatoid arthritis, and CPS. It took a few years of appointments to discover the source of my severe pain in the sacrum area of my pelvis.

Discovering my limits with rheumatoid arthritis

At the time of my diagnosis, I was working at the London Ambulance Service. It involved a long daily commute into London from Kent. The drive progressively became more difficult for me, and I couldn't drive comfortably. I considered taking the trains, but I couldn't do that either. Eventually, I decided to look for a different job that was closer to where I was living. In hindsight, I didn't recognize that I was also going through early menopausal issues. After the breakdown of my 18-year long marriage, I decided to leave Kent and moved to Middlesex.

Finding a fresh start

I was able to find a wonderful job with a Biopharma after my move. The drive to work was only 20 minutes, so I ended up taking the job. During my time there, I was put on meds to help my autoimmune conditions. However, they affected me negatively, and I didn't have a good experience. At times I thought I noticed a difference, but it only lasted a few days before I was in agony again. Since that time, I have always worked in private healthcare. I like that it provides a lot of support and allows me to work from home when I absolutely need to.

Hybrid work keeps the door open

As of September 2024, I'm now 49 and taking a plethora of both RA meds and other related meds. I'm not sure how helpful they are because I still suffer with severe flare ups that render me unable to walk or stand. Despite the severity of my symptoms, I feel fortunate to work for the companies I have been working for. They are flexible about hybrid working, so I've been able to stay in work. If it wasn't for their flexibility, I don't think I'd be able to work at all.

My life revolves around RA

In 2020, my medications were increased and I had to stop driving completely. Now I have to taxi everywhere I go. My life revolves around these awful conditions, and I have no social life at all. Daily chores alone are quite difficult for me, especially on my bad days.

I have also stayed childless after experiencing menopause in my mid 30s. This really affects me because I was desperate for a baby of my own. I live my life one day to the next, not knowing if I will be able to stand or walk without severe pain. Meds help a little, but not enough to help give my life the real boost I need.