Diagnosed at 11 Months Old
Hi, I'm Jennelle and I am 18. I have had RA all my life and only has it been this bad for me. I was in medical remission for 9 years with Remicade. However this ended early this year. It has been getting worse ever since. I had to drop out of college due to the pain. Despite it being a small campus, It would take me 45 minutes to walk to my campus job as it hurt so bad. With this my fatigue was horrible. I would sleep 12 hours and be forced to take 4 hour naps, missing work and classes in the process. Eventually, I had to leave on medical leave. Now I am bed ridden. I use a scooter to get around places like Walmart. My depression gets out of hand as I feel so helpless. I am now filing for disability. I just feel like my life has been ruined from this disease. I wanted to work with children and now I can't even get on their level. If this is my new normal I don't know what I will do. If anyone wants to know about my past feel free to message me. I love helping parents with children with JRA.
When was your last flare?