Doctors who are dismissive about Rheumatoid Arthritis

I was diagnosed with RA very late in life. I was always told I had osteoarthritis. My primary Doctor ordered a blood test to see if I had RA and the test came back positive.

I started treatment about 3 years ago. Treatment started with prednisone and shots which gave little relief.

Started with a new doctor and had several rounds of different pills and weekly shots of methotrexate.

I am now on rituxan and methotrexate shots. I feel somewhat better.

I have other Doctors I see besides my primary care and rheumatologist. Ob-gyn Opthomologist, ear nose and throat Doctors. They always ask why I am taking methotrexate. I always say for RA treatment. They always dismiss this and call it arthritis as if RA doesn’t exist.
Is this the norm? I don’t know what to think or say to them.

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Comments

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  • Jenn Lebowitz
    3 years ago

    Hi Alyce,

    Thank you so much for sharing your story and questions.

    While you may get feedback on personal experience from the community, I thought a few articles on this subject might be helpful, as it sounds like you may be interested in finding doctors that understand RA and treat it with the importance it warrants.
    This first article provides some thoughts on when it’s time to consider changing doctors, if you’re not happy with your current ones: http://rheumatoidarthritis.net/living/dumping-doctor/. The second article is all about finding excellent doctors: http://rheumatoidarthritis.net/living/finding-excellent-doctors/.

    While not everyone has a comprehensive understanding of RA, it’s important that your doctors do not make you feel dismissed. I’m so sorry you’ve had this experience! I do hope these articles, and any community feedback you may get, is helpful!

    We are thinking of you and sending our best!

    Warmly,

    Jenn (Community Manager, RheumatoidArthritis.net)

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