End stage RA?

Living with RA for 30 years, trying all NSAIDS and DMARDS with little success and many deformities, surgery, sepsis I have been referred to as having end stage RA. Has anyone been told this and how are you coping and what do I expect? I am scared and wondering if there is a time frame. I am relying on things to manage pain and comfort like heat, rest, pain meds and patches.

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