Ongoing Saga, Hip Replacement

By casmere

1 min read

Hi all, so as I have stated previously I was seeing a surgeon on August 5th. She was very nice, but right to the point.

The waiting game & RA

She said it would be 2 years before she would be able to do surgery on me. But, with the pain she could see from me walking using my walker, that I won't be able to wait that long.

She has referred me to a colleague in Toronto. The referral has gone through, and I have the Dr's name but still waiting.

I have had to resort to using my walker in the house now as the pain is worst and my hip can give out. Sometimes I feel like I want to cut my leg off above the hip.

Managing rheumatoid arthritis pain

I am supplementing my pain med with Tylenol throughout the day and Tylenol Arthritis for nights. I do not take narcotics and don't want to.

I should be starting on Rinvoq very soon. I don't know but hopefully this might help some with my hip and leg pain.

I know there are many of you that have gone through this so I am not alone.

Thank you for understanding.

Blessings and Prayers

Casmere

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Eileenbowen Member
I was diagnosed with rheumatoid at the age of 48. I had spent several years visiting orthopedic surgeons who injected steroids into various joints. I was one of the lucky ones who cruised along on Methotrexate and Remicade. I was a RN supervisor in an operating room and was able to retire at 65. Life was pretty good prior to turning 70. Today I am 75 and being treated with Cimzia, Predisone and Methotrexate. Have been using a walker for 4 years. After the sudden death of my husband this summer, I will be moving to assisted living. I can no longer carry the trash out or bring groceries into the house. So my tip is to enjoy the good years while preparing for more difficult times.
1. Eileenbowen Member
 <inline-mention username="Eileenbowen" user-id="4166346"/> 
2. Eileenbowen Member
 Thank you so much and good luck when the call comes from Toronto. Hope you feel better soon.
Erin Rush Community Admin
Hi, <inline-mention username="casmere" user-id="3145733"/> ! I hope you are able to get in for the procedure sooner rather than later! I know the wait can seem interminable when you are in pain and feel like your symptoms are continuing to worsen. And I do hope the Rinvoq offers you some measure of relief. Best, Erin, <a href='https://rheumatoidarthritis.net' target='_blank'>RheumatoidArthritis.net</a> Team Member. 
1. casmere Member
 <inline-mention username="Erin Rush" user-id="3164667"/> thank you Erin for your thoughts and wishes. Blessings Casmere
Lynn Marie Witt, MSOT Moderator & Contributor
<inline-mention username="casmere" user-id="3145733"/> Thank so much for reaching out and sharing. Your journey has and is not an easy one. I am hoping there is a break in the surgeons schedule and you are able to receive the surgery you need sooner. You mentioned you will be starting Rinvoq. I was on it for a year. I had much relief and it was a life changing drug. Unfortunately, my liver was effected and I had to come off. Always, risks on any biologics. However, my time on Rinvoq was very beneficial. As, you probably know already that everyone's experience is I have attached some articles for your review. The first is an article I wrote on my experience with Rinvoq. The second article is an article on Rinvoq written by the editorial team. https://rheumatoidarthritis.net/living/rinvoq-treatment-review https://rheumatoidarthritis.net/treatment/rinvoq-upadacitinib Casmere thank you again for reaching out. Please reach out any time, and keep us updated on your surgery date and how you do with Rinvoq. Just Keep Swimming...Lynn Marie, "RheumatoidArthritis.net Team Member" 
1. casmere Member
 <inline-mention username="Lynn Marie Witt" user-id="3244142"/> Thank you for your hope and concern. I truly appreciate it. Also, thank your for the links on Rinvoq. I have read them both, informative. Just a note though, I was very blatently informed that Rinvoq is not a Biologic med. It is a DMARD. This was told to me in a phone call, at least 6 times, from the head pharmacist at Chartwell Health here in Canada. They are one of the government funded companies that help people with the funds to be able to get the expensive various drugs like Biologics. Anyway, Rinvoq most certainly reads the same as a biologic does and I assumed it was a Biologic. It might be classed different in the U.S. though. Thank you for reading my update and I have just submitted another update today, so it should be coming out in a couple weeks or so. Blessings Casmere
Lynn Marie Witt, MSOT Moderator & Contributor
<inline-mention username="casmere" user-id="3145733"/> thanks so much for reaching back out. That is great news that you are working through funding agencies with your government, to help you get treatment from Rinvoq that your doctor is recommending. Glad you found the articles I sent helpful. Look forward to reading your update soon. So very glad Casmere that you are part of our <a href='https://rheumatoidarthritis.net' target='_blank'>RheumatoidArthritis.net</a> family. Best to you! Just Keep Swimming...Lynn Marie, "RheumatoidArthritis.net Team Member"