Identity: Rheumatoid Arthritis
When I was diagnosed with rheumatoid arthritis, it was something that I was expecting. Both my mom and my maternal aunt had been diagnosed with autoimmune diseases many years prior. The symptoms, complications and treatments that they had struggled through were very real to me, and I had always feared that the diagnosis would become mine too.
My diagnoses and my journey
First came fibromyalgia
In 1994, I was diagnosed with fibromyalgia. This disease would raise its ugly head periodically, and keep me down with fatigue and pain. Most of the time, I was able to keep working, but every once in a while, it would put me in the bed with debilitating fatigue and all-over pain. So, when I began having a different kind of stiffness, fatigue and pain in 2011, I began to wonder if an autoimmune disease was beginning to emerge.Then came my RA diagnosisIt was not until 2014 that I was diagnosed with rheumatoid arthritis. I had finally reached a doctor who would do the testing and recognize the symptoms well enough to actually diagnose me correctly. Having sero-negative rheumatoid arthritis makes the diagnosis a little more difficult, and some doctors aren’t willing to jump to giving a patient a diagnosis of an autoimmune disease without clear-cut blood markers.It became my identityOnce I was diagnosed and made it to a good rheumatologist, I wanted so badly to find a treatment that would relieve my symptoms. But as much as we tried, nothing seemed to work. My desperate quest to find relief consumed me; it was all I could think about and it was all I could see in me. It became my identity. My thoughts and feelings centered around my disease. My perception of what I could and could not do came from my understanding of my RA symptoms and what they could do to my body. Depression was constantAs my symptoms continued and no treatment brought a decrease in my disease activity, depression became a regular companion to my RA. Most of my days were spent on the couch in front of the television in pain, lonely, and frustrated that I couldn’t do the things I used to do. I prayed and asked God for healing, and went to others for prayers for healing, but the healing never came. New and different treatments, giving myself injections, and searching through the internet and books to learn more about RA were part of my new reality for the first few years. All I could think was, “why does it have to be this way?” and “will I ever be normal again?” I had to change this identity that consumed meThrough questions and prayers, heart-to-heart conversations with friends and my husband, and finally being tired of feeling sorry myself, I came to the realization that I had let my identity wrap itself around my RA. I could not separate myself from my RA. In my determination to find a treatment that would make my symptoms disappear (or at least lessen) I had lost who I was and always had been. I had to let this go. I had to change my view of myself; I had to see me and what I could do, not what I couldn’t. I began to change my prayers from “why and please” to “thank you.” I thanked God for what I was able to do, what I could use to help others, and give over my quest for the “right treatment” over to God. Changing my view made a world of a differenceAs my view changed, my depression lifted. I could see myself as more than just a disease; I was a person—a spirit, a soul and a body—who just happens to have RA. While my spirit and soul have lifted, my body still suffers. I will not minimize the effects of RA and the insidious nature of it. I recognize that it can put me down at any time of day or night, but it doesn’t have to rule my life. It doesn’t get to define me. I still get to decide that!
Spring is officially here! How are you feeling about the weather change?